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Discussions (191)
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Comment
Hi! My name is Nancy and I live in Cape Coral, Florida. I have been to...
https://connect.mayoclinic.org/comment/39442/
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Discussion:
NET - Insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 6, 2018
Comment
Hi Faith: I went to the NIH in April, 2016. My mom never went there. She...
https://connect.mayoclinic.org/comment/163589/
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Discussion:
NIH clinical study looking for the gene causing carcinoid cancer
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 13, 2017
Comment
Yes, @joannem, Carcinoid cancer is difficult to explain. I always say that it is a rare...
https://connect.mayoclinic.org/comment/102040/
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Discussion:
Carcinoid cancer: Want to meet others
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 16, 2017
Comment
Hello @tresjur and welcome to Mayo Connect. I appreciate your attitude and the "glass half-full" approach...
https://connect.mayoclinic.org/comment/101994/
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Discussion:
Carcinoid cancer: Want to meet others
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 19, 2016
Comment
Dear Gaylejean: If you would like to find a carcinoid support group in your area here...
https://connect.mayoclinic.org/comment/101983/
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Discussion:
Carcinoid cancer: Want to meet others
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 11, 2016
Comment
hey @gg66, I thought I'd throw in my welcome too. I see your question generated a...
https://connect.mayoclinic.org/comment/1196626/
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Discussion:
Living with Neuroendocrine NETS, any advice?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 24, 2024
Comment
@gangcarotid1 No not a New Englander! But both my husband and I are British!! We immigrated...
https://connect.mayoclinic.org/comment/1264167/
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Discussion:
Was it difficult to determine if your paraganglioma was active?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 22 12:35pm
Comment
My husband has much the same type of NET as you. It is grade 1 but...
https://connect.mayoclinic.org/comment/837108/
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Discussion:
NETs: Scheduled for small intestine resection: What to expect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 3, 2023
Comment
I am a grade 1, stage 4 and know exactly how you both feel. It’s the...
https://connect.mayoclinic.org/comment/1238295/
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Discussion:
Diagnosed with NET si-NET Stage 1 Grade 1
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 16 12:22pm
Comment
I too appreciate being able to read of people's experiences, I live in Australia and I...
https://connect.mayoclinic.org/comment/1223283/
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Discussion:
Already on oxygen - diagnosed with DIPNECH: What happens next?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 27 3:39pm
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