Neuroendocrine Tumors (NETs) Support Group

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Comment

I totally know how he and you feel. At least you are there to confirm it....

https://connect.mayoclinic.org/comment/979851/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2023

Comment

My "bucket list" is complete. I have been the "care giver" for both my father and...

https://connect.mayoclinic.org/comment/942391/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Oct 5, 2023

Comment

Hello @charlenesf and welcome to the NETs support group on Mayo Connect. Thank you for sharing...

https://connect.mayoclinic.org/comment/941364/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2023

Comment

I’m so sorry to hear your mother is having these terrible symptoms, , I’m 61 and...

https://connect.mayoclinic.org/comment/940275/

Discussion: Mother might have neuroendocrine tumors, is being told she has IBS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

Comment

I was diagnosed with Carcinoid tumor in Feb 2023. My Chromogranin A blood count had hit...

https://connect.mayoclinic.org/comment/929310/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13, 2023

Comment

Good morning The surgeon has very straightforward and honest. He said that surgery is the best...

https://connect.mayoclinic.org/comment/913416/

Discussion: How do I know somatostatin is in my system?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2023

Comment

Hi @woundedwarrior1969, I moved your message about living with 3 NETs tumors for 50 years to...

https://connect.mayoclinic.org/comment/911813/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2023

Comment

Thank you for replying to my post. It's been a lonely road the past few months....

https://connect.mayoclinic.org/comment/911526/

Discussion: Pheochromocytoma: Anyone being treated for an adrenal mass?

Support Group: Diabetes & Endocrine System

Posted: Aug 12, 2023

Comment

You’ve received valuable comments and suggestions on how to live with our NETS. I’ll add that...

https://connect.mayoclinic.org/comment/896457/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2023

Comment

Highest blood pressure I have had to date is had is 247 over 185, you can...

https://connect.mayoclinic.org/comment/892763/

Discussion: SDHB Positive and Ga-68 Dotatate Scan question.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 9, 2023

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