Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello @latricebj and welcome to Mayo Connect. Here is some information on all of the functions...

https://connect.mayoclinic.org/comment/1203918/

Discussion: Can anyone share information about NET in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4 4:33pm

Comment

I took immunotherapy I was diagnosed in June of 23 with Merkel cell carcinoma it was...

https://connect.mayoclinic.org/comment/1172429/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2024

Comment

Where do you live? You want to be at a teaching hospital if possible. Like Mayo,...

https://connect.mayoclinic.org/comment/1315101/

Discussion: Diagnosis Difficulties

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28 3:57pm

Comment

I get the shot (Lanreotide) every 21 days and had my 41st injection yesterday. Fatigue is...

https://connect.mayoclinic.org/comment/1315505/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 29 8:00am

Comment

After my GI doctor diagnosed my NET’s , my care was turned over to a NET...

https://connect.mayoclinic.org/comment/1292449/

Discussion: How rare is it???

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29 7:23am

Comment

To jls77 It sounds like you're wanting to know about people's experiences w paragangliomas. In April...

https://connect.mayoclinic.org/comment/1164658/

Discussion: Anyone have a paraganglioma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 29, 2024

Comment

@laree my NET also started in the pancreas. The initial diagnosis is ground shaking. In fact,...

https://connect.mayoclinic.org/comment/1207345/

Discussion: Hello. I am new here. My husband was recently diagnosed with NETs.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9 7:35am

Comment

Hi! I am so sorry you are going through this. I just wondered if you were...

https://connect.mayoclinic.org/comment/1245817/

Discussion: NET so worried

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26 9:16am

Comment

I also have the same condition . I am 72 , diagnosed 8 years ago ....

https://connect.mayoclinic.org/comment/1142709/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2024

Comment

Haha! No worries at all. I get asked that a lot and love to share our...

https://connect.mayoclinic.org/comment/1123243/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2024

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