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Discussions (191)
Comments (2,058)
Comment
I had a somewhat similar situation when I was diagnosed with my pancreatic neuroendocrine tumor. In...
https://connect.mayoclinic.org/comment/1351342/
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Discussion:
NET tumor of pancreas (1 cm) diagnosed
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 18 11:06pm
Comment
Hello I had very similar concerns to you. Also worried I had nets elsewhere and it...
https://connect.mayoclinic.org/comment/1351252/
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Discussion:
Neuroendocrine Tumor - no treatment plan method
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 18 6:03pm
Comment
I think I understand what you are saying. I simply don't believe a person that has...
https://connect.mayoclinic.org/comment/1351870/
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Discussion:
What's next after SiNETS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 19 4:44pm
Comment
They have PRRT in Edmonton I think. I would make the trip as its only for...
https://connect.mayoclinic.org/comment/1345097/
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Discussion:
PRRT and lanreotide questions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 10 10:43am
Comment
Hello, I am new to this forum. I am looking for referrals for MEN1 and NETs....
https://connect.mayoclinic.org/comment/1358881/
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Discussion:
Recently diagnosed with MEN1
Support Group:
Diabetes & Endocrine System
Posted: Jul 28 10:27pm
Comment
Yeah my surgical oncologist literally told me it’s a matter of when it comes back not...
https://connect.mayoclinic.org/comment/1348861/
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Discussion:
14 CM PNET w/ one year post resection. When will I see reoccurrence?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 15 1:17pm
Comment
That’s exactly what happened to me in 2022; had every imaginable test possible & last test...
https://connect.mayoclinic.org/comment/1348205/
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Discussion:
What's next after SiNETS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 14 3:01pm
Comment
I agree. From initial diagnosis to Whipple surgery is frightening. But living is good
https://connect.mayoclinic.org/comment/1348918/
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Discussion:
New PNET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 15 2:46pm
Comment
Please keep me posted. I live in Springfield IL so St Louis would be the closest...
https://connect.mayoclinic.org/comment/1349091/
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Discussion:
NET tumor of pancreas (1 cm) diagnosed
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 15 7:04pm
Comment
I'm like Turkey. I want to stretch it out as long as I can. My surgeon...
https://connect.mayoclinic.org/comment/1374166/
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Discussion:
My doctors know nothing
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 19 10:01am
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