Neuroendocrine Tumors (NETs) Support Group

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Comment

In 2019 I had to have a pet scan because I was having liver issues -...

https://connect.mayoclinic.org/comment/1056651/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

Comment

Thank you! I was going to attend the zoom last night but ended up being in...

https://connect.mayoclinic.org/comment/907702/

Discussion: Anyone with an insulinoma have only therapies instead of surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 4, 2023

Comment

I was diagnosed with Carcinoid Cancer with Carcinoid Syndrome in 2003. By that time I was...

https://connect.mayoclinic.org/comment/741205/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 24, 2022

Comment

Thanks for your reply. I live in Canada. We dont do medical insurance unless we travel...

https://connect.mayoclinic.org/comment/1388073/

Discussion: I saw the surgeon. More confused than ever.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 6 1:12pm

Comment

I just started this same journey a couple of months ago. I chose not to do...

https://connect.mayoclinic.org/comment/1396618/

Discussion: My carcinoid tumor is inoperable: What are the best ways to control?

Support Group: Neuroendocrine Tumors (NETs)

Posted: 5 days ago

Comment

Hi , welcome to the DIPNECH club 🥴. You’ve come to the right place! I also...

https://connect.mayoclinic.org/comment/1392355/

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12 1:18pm

Comment

For those of you interested in learning more about PRRT, you might find this webinar interesting....

https://connect.mayoclinic.org/comment/1398943/

Discussion: PRRT Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: 2 days ago

Comment

Yes, sometimes NETs are found with CT scans but it takes more than that to confirm...

https://connect.mayoclinic.org/comment/1383551/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 31 1:46pm

Comment

Many thanks to each of you for weighing in. I live on the east coast, about...

https://connect.mayoclinic.org/comment/1392953/

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13 2:15pm

Comment

Hello and welcome to the group. I would recommend you visit Ronny Allan’s website. He has...

https://connect.mayoclinic.org/comment/1378755/

Discussion: Atypical Carcinoid Tumor - lower left lobectomy. Radiation questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 25 8:31am

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