Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi billyfeet, I had two NETs on the tail of my pancreas both over 2 cms....

https://connect.mayoclinic.org/comment/842530/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 13, 2023

Comment

@markbrinkley Sure, I have had surgeries for all three NETs with no other treatment beyond the...

https://connect.mayoclinic.org/comment/234458/

Discussion: New to Mayo: MEN1 with duodenum NET G1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 12, 2018

Comment

Hi vtn So I didn’t have the gallium first. So when they did the first recheck...

https://connect.mayoclinic.org/comment/858909/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2023

Comment

Hi Teresa, Thank you for sharing your story and suggestions. I'm assuming your surgeries were from...

https://connect.mayoclinic.org/comment/762620/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2022

Comment

It really, really, really, really sux. Welcome to your new "normal". For me, I had to...

https://connect.mayoclinic.org/comment/1190944/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2024

Comment

Here’s a brief summary prior to starting treatment with Dr Wolin. 59 year old male presents...

https://connect.mayoclinic.org/comment/1238487/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16 4:10pm

Comment

@colleenyoung Maybe you will want to cross post this to other groups. My husband has fought...

https://connect.mayoclinic.org/comment/196569/

Discussion: Overmedication with cancer and other conditions

Support Group: Head & Neck Cancer

Posted: Apr 19, 2018

Comment

Hi Eileen; I’m sure you’re in complete shock with your diagnosis. Your case sounds a lot...

https://connect.mayoclinic.org/comment/1284362/

Discussion: New To NETS - Stage 4 / Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18 12:27am

Comment

Hello, My dad was recently diagnosed with a GI NET. We live in the US ....

https://connect.mayoclinic.org/comment/1010196/

Discussion: GI NET attached to pancreas supposedly non-producing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2024

Comment

This is my opinion with the facts for myself. I started octreotide twelve and a half...

https://connect.mayoclinic.org/comment/1162233/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2024

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