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Discussions (128)
Comments (1,498)
Comment
We live in Greece where there are no NET specialists unfortunately. Oncologists give treatment according to...
https://connect.mayoclinic.org/comment/1025604/
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Discussion:
Atypical pulmonary carcinoid
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 1 3:14pm
Comment
Hi. Good to hear from you. I will try to help. What I have done has...
https://connect.mayoclinic.org/comment/776368/
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Discussion:
Prognosis for Metastasized NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 22, 2022
Comment
We live in Charleston, SC and he goes to a Roper Oncologist who specializes in NETS...
https://connect.mayoclinic.org/comment/998850/
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Discussion:
Prognosis for Metastasized NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 17 8:51am
Comment
Good tips, @kgrear. One often has to be persistent. You sound like you know the importance...
https://connect.mayoclinic.org/comment/988632/
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Discussion:
Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 30, 2023
Comment
I literally couldn’t change the big thick pad I had to tape onto the wound where...
https://connect.mayoclinic.org/comment/990558/
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Discussion:
Questions I should ask before surgery for Lung NETs?
Support Group:
Lung Cancer
Posted: Jan 2 9:21pm
Comment
Hello everyone. I have bilateral Pheochromocytoma's on both my adrenal glands. I live in Oregon. This...
https://connect.mayoclinic.org/comment/764174/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 22, 2022
Comment
Patrick, were your tumors NET’s? Who is your oncologist at Barnes? I was diagnosed with a...
https://connect.mayoclinic.org/comment/1031029/
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Discussion:
High risk surgery. Is it worth it?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 10 11:26am
Comment
Will receive it Tuesday, post what I learn, and go from there. If this is a...
https://connect.mayoclinic.org/comment/1074541/
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Discussion:
What’s the best care option for live alone senior during radiation?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 25 4:04pm
Comment
My tumor was around the tail of the pancreas, so I had distal pancreatectomy and splenectomy....
https://connect.mayoclinic.org/comment/1088225/
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Discussion:
NET in body of pancreas: What are my treatment options?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 16 9:29pm
Comment
I live within reach of Memorial Sloan Kettering so called just to get a 2nd opinion....
https://connect.mayoclinic.org/comment/1087269/
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Discussion:
On choosing a surgeon for pulmonary carcinoid resection…
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 15 9:34am
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