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Discussions (191)
Comments (2,058)
Comment
This site is new to me. I was diagnosed with NET and Carcinoid Syndrome in 2013....
https://connect.mayoclinic.org/comment/849237/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 25, 2023
Comment
Hi dbamos1945. I would think you have both cysts and solid tumors in your liver. A...
https://connect.mayoclinic.org/comment/819906/
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Discussion:
Lesions, Cystic liver mets, vs Tumors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 2, 2023
Comment
@fabiant No she had a open incision, about 12" from center of stomach up. So a...
https://connect.mayoclinic.org/comment/848829/
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Discussion:
PNET Surgery: My recovery journey
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 24, 2023
Comment
You should ask your doctor first to test your Serotonin levels when they do your 28...
https://connect.mayoclinic.org/comment/1357948/
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Discussion:
Should NET w/liver met patient stop rx that has Seratonin?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 27 6:46pm
Comment
Hi, I was in middle of this and my msg just disappeared..lol but anyway, no my...
https://connect.mayoclinic.org/comment/1296038/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 3 8:08pm
Comment
@jutebox42 & @hopeful33250 You asked about my Neuroendocrine Cancer diagnosis - dx October 2021 biopsy in...
https://connect.mayoclinic.org/comment/1251442/
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Discussion:
Anyone have side effects after Lanreotide injection?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 6 1:53am
Comment
I'm exactly your age and my situation appears to be exactly like yours. But my journey...
https://connect.mayoclinic.org/comment/941331/
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Discussion:
4 treatment options from my doctor, which one should I start with?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 3, 2023
Comment
Hello everyone!! I am new to the group!! Have been on my cancer journey since April...
https://connect.mayoclinic.org/comment/755415/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 29, 2022
Comment
Hi Mark, regarding your question about the Chromogranin A (CGA) test, I have found some information,...
https://connect.mayoclinic.org/comment/745379/
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Discussion:
Recommendation for Seattle Cancer Care Alliance MDs Treating NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 4, 2022
Comment
Thanks for all of that information, @gapsc I know so many NET patients who were misdiagnosed...
https://connect.mayoclinic.org/comment/134270/
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Discussion:
Typical Carcinoid Tumor in Lungs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 11, 2018
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