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Discussions (128)
Comments (1,498)
Comment
@briea You mentioned that you were thinking about another opinion. I would highly recommend that. You...
https://connect.mayoclinic.org/comment/913563/
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Discussion:
Anyone with an insulinoma have only therapies instead of surgery?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 15, 2023
Comment
My best advice is to have the surgery if your doctor recommends it. Don't be afraid...
https://connect.mayoclinic.org/comment/902822/
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Discussion:
What do I need to know about NETS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 26, 2023
Comment
I can truly empathize as I have been living the same nightmare since last November. I...
https://connect.mayoclinic.org/comment/932111/
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Discussion:
Ways to control hypoglycemia caused by insulinoma in pancreas?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 18, 2023
Comment
Yes, of course. I live in Pamplona, in the north of Spain
https://connect.mayoclinic.org/comment/1054509/
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Discussion:
Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 21 2:54am
Comment
I am in Florida. I feel lucky to be so close to Mayo Clinic. They do...
https://connect.mayoclinic.org/comment/1054510/
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Discussion:
Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 21 3:05am
Comment
I have been going through the same thing! Symptoms but I get no answers. My doctors...
https://connect.mayoclinic.org/comment/934493/
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Discussion:
Carcinoid syndrome; NET not found
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 22, 2023
Comment
NET is a very rare cancer still and many experienced oncologists still have dealt with very...
https://connect.mayoclinic.org/comment/935280/
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Discussion:
Follow up surgery for PNET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 24, 2023
Comment
@sop, I’m sorry to hear that your husband has been diagnosed with these rare tumors, but...
https://connect.mayoclinic.org/comment/943323/
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Discussion:
Interested in hearing people's experiences with PRRT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 6, 2023
Comment
Hello @terrycooper and welcome to the NETs support group on Mayo Connect. It looks like the...
https://connect.mayoclinic.org/comment/973219/
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Discussion:
High or Fluctuating Chromogranin A Level: What does it mean?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 1, 2023
Comment
I was diagnosed with atypical carcinoid of the lung that had metastasized to my lymph nodes....
https://connect.mayoclinic.org/comment/1025524/
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Discussion:
Atypical pulmonary carcinoid
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 1 12:36pm
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