Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,251 total results

Comment

Has anyone been advised to use a celiac plexus nerve block for back and upper abdominal...

https://connect.mayoclinic.org/comment/1019957/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Feb 21, 2024

Comment

Patrick, you have helped me immensely! I can't believe I found someone else that has this!...

https://connect.mayoclinic.org/comment/908215/

Discussion: Has anyone had NETs metastasized to heart?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2023

Comment

@mgreene No problem regarding the error in the date - I understood what you were trying...

https://connect.mayoclinic.org/comment/184534/

Discussion: Carcinoid Cancer and working

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 19, 2018

Comment

Good morning!!! As I mentioned above, I was diagnosed January 2020, grade 3 (Ki67 17-29 depending...

https://connect.mayoclinic.org/comment/1247365/

Discussion: Anyone have experience with cabozantinib (Cabometyx)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28 12:10pm

Comment

I guess its time for an update. On April 14'th Dr Cleary and his team went...

https://connect.mayoclinic.org/comment/849178/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2023

Comment

I agree with other comments you need to respectfully push your care team for possible treatments...

https://connect.mayoclinic.org/comment/889727/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4, 2023

Comment

I was diagnosed Jan 2020, grade 3 (ki67 17-29%), well differentiated, unknown primary, mets to liver...

https://connect.mayoclinic.org/comment/1334187/

Discussion: Everolimus/ Afinitor experience/side effects

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24 11:47am

Comment

Well, let me know if there is anything that I can do to help. I just...

https://connect.mayoclinic.org/comment/839539/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7, 2023

Comment

Hello @sandy23 I'm just now catching up on your posts that started on October 7. I...

https://connect.mayoclinic.org/comment/762504/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2022

Comment

I had the Whipple October of 2024 and then 3 months later when I went in...

https://connect.mayoclinic.org/comment/1269552/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29 4:27pm

Digestive Health

Follow

16397

2 minutes ago

Follow

706

42 minutes ago

Follow

7154

1 hour ago

Pancreatic Cancer

Follow

3114

2 hours ago

Follow

8896

2 hours ago