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Discussions (128)
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Comment
I am feeling pretty well thank you. Came back from a 3 mile hike with my...
https://connect.mayoclinic.org/comment/881898/
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Discussion:
My Sister and Best Friend
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 20, 2023
Comment
Ask your doctors about adding Temozolimide to your regimen. It is an oral chemotherapy that is...
https://connect.mayoclinic.org/comment/885907/
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Discussion:
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 27, 2023
Comment
@ronjake, I’ve been on injections of Octreotide for 5+ years and only had a lump twice...
https://connect.mayoclinic.org/comment/898742/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 19, 2023
Comment
Chocolate and I are really good friends, and I refuse to give up my simple pleasures!...
https://connect.mayoclinic.org/comment/898928/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 20, 2023
Comment
Aww thank uuu!! I'm going to try and keep smiling thru this and fighting for ALL...
https://connect.mayoclinic.org/comment/901285/
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Discussion:
Finally got my NETSPOT Scan approved by my medical insurance
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 24, 2023
Comment
I can’t say I am totally surprised at my response to the treatment. Throughout my 75...
https://connect.mayoclinic.org/comment/895279/
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Discussion:
Keytruda, an immunotherapy drug, is shrinking the Merkel Cell tumors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 13, 2023
Comment
I go to KU Med, and they have always scheduled my PET scans for the day...
https://connect.mayoclinic.org/comment/896642/
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Discussion:
How long do I wait between injections and PET scans.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 16, 2023
Comment
My son in law had is spleen removed at a very young age due to an...
https://connect.mayoclinic.org/comment/857839/
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Discussion:
Has anyone chosen the Watch and Wait and regretted that choice?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 10, 2023
Comment
I had my first visit today with one of the smartest, intuitive doctors I’ve ever been...
https://connect.mayoclinic.org/comment/873214/
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Discussion:
Neuroendocrine tumor and carcinoid tumor
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 5, 2023
Comment
That’s good news. Sounds like it was caught early. Like I said we all have different...
https://connect.mayoclinic.org/comment/913622/
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Discussion:
Anyone with an insulinoma have only therapies instead of surgery?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 15, 2023
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