Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello Theresa. Thank you for your interest in my daughter. I forgot to mention that my...

https://connect.mayoclinic.org/comment/793404/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2023

Comment

Thank you for your reply. Up until Wednesday’s Pet Scan I had approximately 6 liver lesions...

https://connect.mayoclinic.org/comment/1332359/

Discussion: Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21 11:33pm

Comment

I am 48, well-diff, grade 3 (ki67 17-29), unknown primary with tumors in liver (innumerable), pancreas,...

https://connect.mayoclinic.org/comment/1117054/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2024

Comment

Hi Teresa, Hubs is currently stable. His treatment is the Sandostatin/Octreotide. It appears that when his...

https://connect.mayoclinic.org/comment/1270087/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30 11:31am

Comment

Hi there, I'll quote a doctor, any doctor... lol "everything in moderation". My hubs has stage...

https://connect.mayoclinic.org/comment/1231190/

Discussion: How does Alcohol use affect Liver NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 1:22am

Comment

Yes it was incidental, just like my original diagnosis. In April of 2017 we were in...

https://connect.mayoclinic.org/comment/877828/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2023

Comment

Hi Linda How did your scan go? Lots has happened since my last post. I had...

https://connect.mayoclinic.org/comment/837244/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

Comment

Hi @kt348 I had a similar experience during a endoscopic ultrasound of a liver biopsy. My...

https://connect.mayoclinic.org/comment/762551/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2022

Comment

I had surgery in 2016 (8-years ago) to remove tumor / mass at appendix and five...

https://connect.mayoclinic.org/comment/1142526/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2024

Comment

Welcome to the group! To say the least insulinomas can be challenging! Every case is a...

https://connect.mayoclinic.org/comment/1113245/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2024

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