Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,249 total results

Comment

My NET started in the pancreas (though I don't have pancreatic cancer) and migrated to the...

https://connect.mayoclinic.org/comment/1150696/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2024

Comment

Dr. Sonbol and his team saved my life. So, I am biased. By the time that...

https://connect.mayoclinic.org/comment/981090/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2023

Comment

Lenora, Thank you so much! My husband is actually PNET I guess? It started in his...

https://connect.mayoclinic.org/comment/669949/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2022

Comment

Welcome to Connect, @worriedlovingwife I am sorry that you found us under such stressful circumstances. I...

https://connect.mayoclinic.org/comment/292369/

Discussion: Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 11, 2020

Comment

Hi all, hoping spring is good and well for you. I’m circling back to my post...

https://connect.mayoclinic.org/comment/1275884/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6 5:38pm

Comment

I to had my first Lanreotide injection on July 6th after having pancreatic cancer surgery in...

https://connect.mayoclinic.org/comment/898534/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2023

Comment

@pokeymama: a 24hour urine test is beneficial in NET diagnosis. Gallium or Copper Dotatate PET scan...

https://connect.mayoclinic.org/comment/1265205/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23 6:53pm

Comment

Thank you for your reply. Up until Wednesday’s Pet Scan I had approximately 6 liver lesions...

https://connect.mayoclinic.org/comment/1332359/

Discussion: Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21 11:33pm

Comment

I did have a good experience in NC. Duke is where my initial diagnosis and was...

https://connect.mayoclinic.org/comment/1037088/

Discussion: Does Mayo Clinic do insulinoma testing?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2024

Comment

I was diagnosed in Jan 2019 with a well-differentiated, functioning Net with a Ki-67 index of...

https://connect.mayoclinic.org/comment/1028134/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5, 2024

Digestive Health

Follow

16406

1 hour ago

Follow

8902

4 hours ago

Cancer: Managing Symptoms

Follow

4933

5 hours ago

Visiting Mayo Clinic

Follow

5952

6 hours ago

Follow

7163

7 hours ago