Neuroendocrine Tumors (NETs) Support Group

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Comment

Digestion issues are different for everyone. I had about a yard of small intestine removed and...

https://connect.mayoclinic.org/comment/879118/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15, 2023

Comment

I haven’t had any problems with pain. My biggest problem is with Neuropathy in my hands...

https://connect.mayoclinic.org/comment/834575/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30, 2023

Comment

I just learned I have a prostate neuroendocrine tumor I did the urine test first by...

https://connect.mayoclinic.org/comment/756090/

Discussion: Just got the news… stage 2 Carcinoid tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2022

Comment

Oh my goodness! I'm so sorry you have to go through this. It sounds like you...

https://connect.mayoclinic.org/comment/1332307/

Discussion: Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21 9:04pm

Comment

I’ve gone through four embolization procedures on my liver and I’m down to my last one...

https://connect.mayoclinic.org/comment/1047618/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 8, 2024

Comment

I have two carcinoid tumors on my liver and they have been there for many years....

https://connect.mayoclinic.org/comment/1111420/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2024

Comment

@mbg20 my primary oncologist is Dr Dar (primary office is in Leesburg, VA). Dar was recommended...

https://connect.mayoclinic.org/comment/820306/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3, 2023

Comment

I have pancreatic NETS that have spread to my liver. I was diagnosed in August. I...

https://connect.mayoclinic.org/comment/818762/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2023

Comment

Hi @casualsuman and @sanjaykumar1. It looks like you may have created 2 accounts - Perhaps son...

https://connect.mayoclinic.org/comment/761776/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16, 2022

Comment

Same here the fatigue had me sleeping thru life last 2 1/2 plus years. Reaction of...

https://connect.mayoclinic.org/comment/1308411/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20 9:17am

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