Neuroendocrine Tumors (NETs) Support Group

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Comment

My PCP ordered a 5HIAA based on his opinion that I have carcinoid syndrone. It came...

https://connect.mayoclinic.org/comment/721534/

Discussion: Looking for neuroendocrine tumor (NET) with carcinoid syndrome support

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 27, 2022

Comment

Wow--thanks for asking! On a practical level, radiation will be done at my local regional cancer...

https://connect.mayoclinic.org/comment/819982/

Discussion: NETs: Competing Pathologies--how to sort it all out?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2023

Comment

Hi, I am living in Adelaide. South Australia. I went through chemo with non Hodgkins lymphoma...

https://connect.mayoclinic.org/comment/819077/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Comment

I'm so glad for the update, @mir123. It sounds like you have a plan for treatment....

https://connect.mayoclinic.org/comment/819071/

Discussion: NETs: Competing Pathologies--how to sort it all out?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Comment

Hi Angela! I would really like you to get ahold of copies of all your tests...

https://connect.mayoclinic.org/comment/817135/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2023

Comment

My incontinence was enough to classify me as unsuitable for PRRT treatment. Radiation residue was the...

https://connect.mayoclinic.org/comment/815563/

Discussion: PRRT for those with Incontinence Issues

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22, 2023

Comment

Hello. Anyone out there diagnosed with grade one tumor of small intestine? I had section of...

https://connect.mayoclinic.org/comment/813197/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17, 2023

Comment

Hello, My darling husband, age 72, was diagnosed with a well-defined NET on his ileum this...

https://connect.mayoclinic.org/comment/812435/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

Comment

Hi @allan2022, welcome. I moved your message to the Neuroendocrine Tumors (NETs) Support Group here https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/...

https://connect.mayoclinic.org/comment/810465/

Discussion: Searching for info re NETs and heart issues

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2023

Comment

@tufan sorry for late reponse... thank you so much for your input. She finished her first...

https://connect.mayoclinic.org/comment/807461/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2023

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