Neuroendocrine Tumors (NETs) Support Group

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I discovered by a self orderded MRI in Mar. of 2023 that I had Nets. I...

https://connect.mayoclinic.org/comment/1195148/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2024

Comment

Hello Lanamarie. I am not far from you in New London, MN. I was diagnosed with...

https://connect.mayoclinic.org/comment/1278916/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10 7:36pm

Comment

Wow! To all in this discussion. My husband is due to have his first liver debulking...

https://connect.mayoclinic.org/comment/771459/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2022

Comment

Hi I’ve been living with carcinoid tumor now since 2011 when I first learned I had...

https://connect.mayoclinic.org/comment/747582/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 9, 2022

Comment

My first MRI was Dec 2022 when I was diagnosed. PET Scan was January 2023 to...

https://connect.mayoclinic.org/comment/1165530/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2024

Comment

I did lanreotide injections for about 3 years until it appeared that it was not as...

https://connect.mayoclinic.org/comment/1324845/

Discussion: Lanreotide side effects: diarrhea constipation, what to do?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 11 9:42am

Comment

I started on Eberolimus 10mg daily March 2023. I developed mouth sores which bece more manageable...

https://connect.mayoclinic.org/comment/1117855/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 4, 2024

Comment

Kim1965, I was very interesting to read about your wife’s case. Sounds very similar to mine...

https://connect.mayoclinic.org/comment/932191/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2023

Comment

Hi, you have been through a lot, hoping you can find the answers you need. The...

https://connect.mayoclinic.org/comment/918714/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 25, 2023

Comment

I’m so sorry you’re having all these problems! My NET was found in my cecum during...

https://connect.mayoclinic.org/comment/898113/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2023

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