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2,251 total results
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Discussions (191)
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Comment
Hello @ beaglebass! My pNET is functioning, so my story may not be too close to...
https://connect.mayoclinic.org/comment/1065411/
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Discussion:
Grade 1 Non-functioning (NF) NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 10, 2024
Comment
Greetings! Thanks for the post. I am happy to connect with you. I have been dealing...
https://connect.mayoclinic.org/comment/799602/
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Discussion:
Pancreatic NETs: Looking to connect with anyone with insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 21, 2023
Comment
Hi I feel every bite of your trails I traveled almost the same road , misdiagnosed...
https://connect.mayoclinic.org/comment/792778/
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Discussion:
Frustrated with the medical establishment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 5, 2023
Comment
Hi Colleen, I've had 2 gallium 68 PET scans, one before my right hemicolectomy surgery in...
https://connect.mayoclinic.org/comment/637399/
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Discussion:
Possible NET with No Evidence of Tumor: Mediastinal Mass
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 20, 2021
Comment
My primary was a tumor wrapped around my small intestine, discovered in 2007. I have been...
https://connect.mayoclinic.org/comment/898391/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 19, 2023
Comment
Hello, mamandneuroendocrine! I was in a similar situation. My pNET was discovered accidentally during a stroke...
https://connect.mayoclinic.org/comment/953478/
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Discussion:
Metastatic NeuroEndocrine Grade 3 - ki 80% -
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 25, 2023
Comment
I was diagnosed with Pancreatic Acinar Cell Carcinoma in June 2012 with the tumor 4cmx3cmx3cm on...
https://connect.mayoclinic.org/comment/1059508/
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Discussion:
Anyone have Pancreatic Acinar Cell Carcinoma?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 30, 2024
Comment
The first embolization I felt nothing and the doctor told me he was worried I’d be...
https://connect.mayoclinic.org/comment/1048341/
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Discussion:
Spreading NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 10, 2024
Comment
Going for my 3rd injection of 120 mg Lanreotide next week. No facial or lip sores....
https://connect.mayoclinic.org/comment/1119417/
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Discussion:
Facial and lip sores from lanreotide injections for NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 7, 2024
Comment
I, experienced weight gain, depression, and muscle soreness. I was also lethargic, often lacking the energy...
https://connect.mayoclinic.org/comment/805097/
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Discussion:
Gynecologic neuroendocrine metastasized to lungs: Need a specialist
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 1, 2023
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