Neuroendocrine Tumors (NETs) Support Group

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Comment

In partial response to one of your latter questions. I am on Octreotide or Sandostatin as...

https://connect.mayoclinic.org/comment/896094/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2023

Comment

Hi I was diagnosed a year ago with NET. It showed up with multiple lesions in...

https://connect.mayoclinic.org/comment/854586/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

Comment

Just thought I would contact this group to say Hi. I was diagnosed with NETS about...

https://connect.mayoclinic.org/comment/689085/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13, 2022

Comment

Welcome to Mayo Connect, @glenkinman68 I am glad that you have joined our NETs discussion group....

https://connect.mayoclinic.org/comment/134547/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2019

Comment

First let me say I'm sorry you had to join this group. The good news is...

https://connect.mayoclinic.org/comment/1285920/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20 9:19am

Comment

@vanhauen, Hello Nancy, and welcome to the NETs support group on Mayo Connect. I appreciate you...

https://connect.mayoclinic.org/comment/1200473/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 30, 2024

Comment

Hi Kim I posted about Histrotripsy a while ago, but more info comes out every day....

https://connect.mayoclinic.org/comment/1146088/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2024

Comment

Right now I’m being seen at Johns Hopkins. Because of a developing bowel obstruction the procedures...

https://connect.mayoclinic.org/comment/834012/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

Comment

Hello @marifersitacastro, I am glad that you are seeking out help for your dad as he...

https://connect.mayoclinic.org/comment/612492/

Discussion: July's Neuroendocrine Support Group

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29, 2021

Comment

@tomewilson Hi Tom: I have not heard that this test is no longer use. I still...

https://connect.mayoclinic.org/comment/135493/

Discussion: The role of Tumor Marker Labs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8, 2017

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