Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,626 total results

Comment

My CAPTEM treatment was the same minus the injections. The last two months have only been...

https://connect.mayoclinic.org/comment/956992/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2023

Comment

I had my pituitary surgery x2, 20 years ago, and was told there is no correlation,...

https://connect.mayoclinic.org/comment/966098/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2023

Comment

I can only respond with my own experience. But first off am sending both sympathy and...

https://connect.mayoclinic.org/comment/953249/

Discussion: Anyone have neuroendocrine tumor (NETs) of the breast?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

Comment

When reading your active surveillance that makes sense if my health and tumor are being watched....

https://connect.mayoclinic.org/comment/698101/

Discussion: Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma,

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2022

Comment

Hello, i know i have posted here before. it was a while ago i believe my...

https://connect.mayoclinic.org/comment/819254/

Discussion: Linear endocrine cells hyperplasia & Autoimmune Gastritis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Comment

Memorial Sloan Kettering rocks in general. Lots of great people. After my surgery, there were no...

https://connect.mayoclinic.org/comment/812183/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Comment

Good luck to your wife. I’ve had chemo too, but not the pill. Had injections every...

https://connect.mayoclinic.org/comment/810971/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

Comment

Wow, sounds like your son has had a really rough go. I’m sorry to hear that...

https://connect.mayoclinic.org/comment/810108/

Discussion: determination of primary site of NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2023

Comment

Hi Colleen, thank you for your kind words. We are currently trying to get him an...

https://connect.mayoclinic.org/comment/809793/

Discussion: determination of primary site of NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 11, 2023

Comment

Greetings....I am still standing and living a normal life at 85 with my disease in the...

https://connect.mayoclinic.org/comment/801669/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2023

Visiting Mayo Clinic

Follow

4520

2 hours ago

Pancreatic Cancer

Follow

2233

3 hours ago

Follow

1228

8 hours ago

Follow

6928

9 hours ago

Follow

5510

10 hours ago