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Discussions (191)
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Comment
Thank you for reaching out. I am a patient of Dr. Jason Starr at Mayo in...
https://connect.mayoclinic.org/comment/831954/
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Discussion:
Anyone treated for NETs at Mayo Clinic in Jacksonville, FL
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 25, 2023
Comment
Hello @wdd18054 I appreciate your post. I am Teresa and a volunteer mentor with Connect. I...
https://connect.mayoclinic.org/comment/186230/
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Discussion:
Multiple abnormal hormone levels - Could it be autoimmune related?
Support Group:
Autoimmune Diseases
Posted: Feb 23, 2018
Comment
Was it a PET Dotatate scan he had? That's the one my Doc uses to find...
https://connect.mayoclinic.org/comment/1248357/
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Discussion:
New Diagnosis: husband's labs are all indicating NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 1 10:54pm
Comment
Thanks for the reminder to fill you in. I did ask my IR who did my...
https://connect.mayoclinic.org/comment/957412/
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Discussion:
Anyone heard about Histotripsy for liver NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 1, 2023
Comment
Finding out you may have a net is a hard thing to deal with! Stay positive...
https://connect.mayoclinic.org/comment/1226616/
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Discussion:
New Diagnosis: husband's labs are all indicating NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 1 3:30am
Comment
Have you had a PET scan? 60% of the time NETs have spread before they find...
https://connect.mayoclinic.org/comment/1204646/
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Discussion:
Can anyone share information about NET in small intestine?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 5 1:39pm
Comment
Hi, I found it during colonoscopy. It showed up as 2cm polyp so close to my...
https://connect.mayoclinic.org/comment/1054489/
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Discussion:
Large Appendiceal NET, well-differentiated
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 20, 2024
Comment
Hi vtn. I agree with what has been previously said. You have some people in here...
https://connect.mayoclinic.org/comment/859271/
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Discussion:
Just diagnosed with PNET: Any thoughts on watch & wait approach?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 13, 2023
Comment
I was diagnosed with nets in April of 2020. The nets were in my right lung....
https://connect.mayoclinic.org/comment/1269123/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 29 7:04am
Comment
Hi, @matt2024 ! Thank you for reaching out! I am "almost"vegetarian- very little meat and ear...
https://connect.mayoclinic.org/comment/1084252/
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Discussion:
Grade 1 Non-functioning (NF) NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 10, 2024
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