Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,626 total results

Comment

Thanks so much! I’m going to look at one respite care/assisted living facility this weekend -...

https://connect.mayoclinic.org/comment/1074103/

Discussion: What’s the best care option for live alone senior during radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24 10:55pm

Comment

Hi. In December 2019 I had a biopsy that showed I had a 2cm non-functioning malignant...

https://connect.mayoclinic.org/comment/1067425/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13 6:43pm

Comment

Most people have replied about CgA. I live in Uk and have grade 1, small bowel...

https://connect.mayoclinic.org/comment/1091150/

Discussion: What is a normal range for Chromogranin A test? Mine was 99 in 2021.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21 12:14pm

Comment

The Whipple procedure involves the resection of the head of the pancreas. This section is where...

https://connect.mayoclinic.org/comment/985469/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2023

Comment

Welcome, @mrsdit. Indeed. To help you meet other members living with merkel cell carcinoma, I moved...

https://connect.mayoclinic.org/comment/1073748/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24 9:44am

Comment

@rogo, I believe you are referring to lung carcinoid tumors with Diffuse Idiopathic Pulmonary NeuroEndocrine Cell...

https://connect.mayoclinic.org/comment/1070380/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 18 2:04pm

Comment

Just going to say that I just finished my first week at Mayo and was SO...

https://connect.mayoclinic.org/comment/837793/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

Comment

I live in Kissimmee I had made multiple trips and tomorrow need to stay at Jacksonville...

https://connect.mayoclinic.org/comment/772860/

Discussion: Might we have to Travel Twice to Mayo?

Support Group: Visiting Mayo Clinic

Posted: Nov 14, 2022

Comment

I had a lobectomy. They did not crack my ribs to do it. They did it...

https://connect.mayoclinic.org/comment/775975/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

Comment

@outlawcancer, It sounds like you have been working on this diagnosis for a while, now. This...

https://connect.mayoclinic.org/comment/782731/

Discussion: Anyone out there have PNET experiences and outcomes to share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2022

Follow

5510

29 minutes ago

Visiting Mayo Clinic

Follow

4520

4 hours ago

Pancreatic Cancer

Follow

2233

5 hours ago

Follow

1228

10 hours ago

Follow

6928

11 hours ago