Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello @gneiss50 I appreciate you sharing your journey with NETs. Many of us with NETs share...

https://connect.mayoclinic.org/comment/758993/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 9, 2022

Comment

We are strong! She has gone from stage 4 mass on pancreas and too numerous tumors...

https://connect.mayoclinic.org/comment/889675/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2023

Comment

Great point. My drainage was unusual - my doc thinks the resident took out a stitch...

https://connect.mayoclinic.org/comment/990297/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Jan 2 11:56am

Comment

My doctors would not listen to me at all! Just kept saying they don't know why...

https://connect.mayoclinic.org/comment/979673/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2023

Comment

Hi, My oncologist has sent me to palliative care and they are helping but nothing tried...

https://connect.mayoclinic.org/comment/734944/

Discussion: Pituitary and pNET: Can't do the things I love anymore

Support Group: Brain Tumor

Posted: Aug 7, 2022

Comment

Hi @bellom, welcome. I moved your post to this existing discussion: - Just diagnosed with pancreatic...

https://connect.mayoclinic.org/comment/922124/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 31, 2023

Comment

Everyone I consulted with--from UNM to NYU--said the only treatment for NET in breast is the...

https://connect.mayoclinic.org/comment/907122/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2023

Comment

Thank you @tomrennie ! I think looking and acting positively is the best we can do!...

https://connect.mayoclinic.org/comment/1040350/

Discussion: Meet @pavalina60

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 26 6:28am

Comment

Yes l have Nerocarcinoid, cancer! NETS. My breathing is labored, but l am going to do...

https://connect.mayoclinic.org/comment/1033764/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15 1:15am

Comment

Well, Gigg66 it sounds like you and your doctors do have a plan. I'm glad to...

https://connect.mayoclinic.org/comment/1062304/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4 9:38pm

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