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2,251 total results
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Discussions (191)
Comments (2,060)
Comment
I’m not sure why things are offered in a different order Some things I read say...
https://connect.mayoclinic.org/comment/956820/
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Discussion:
Is everyone with pNETs on creon?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 31, 2023
Comment
I want to report in on my current situation. My GP referred me to a local...
https://connect.mayoclinic.org/comment/808662/
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Discussion:
Long Time Survivor With Concerns re Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 9, 2023
Comment
Hi Colleen. I was have Nets in my cecum, small intestines, lymph nodes, liver and heart....
https://connect.mayoclinic.org/comment/971488/
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Discussion:
Should NET w/liver met patient stop rx that has Seratonin?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 28, 2023
Comment
I had 3 ER visits where there were a variety of inconclusive diagnosis. Not sure if...
https://connect.mayoclinic.org/comment/1173512/
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Discussion:
How many doctors did you see to get to your NETS diagnosis?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 14, 2024
Comment
Definitely get a 2nd opinion & see a NETS surgical oncologist. Your symptoms are exactly like...
https://connect.mayoclinic.org/comment/1294227/
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Discussion:
Neuroendocrine Tumor - no treatment plan method
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 1 11:06am
Comment
Hello, thanks so much for your reply. I will research more about the scan you recommend...
https://connect.mayoclinic.org/comment/1219810/
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Discussion:
Liver masses found on CT Scan
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 23 1:31pm
Comment
My husband has G3 Stage 4 insulinoma, Primary in Pancreas and “Too many to count in...
https://connect.mayoclinic.org/comment/1047677/
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Discussion:
Spreading NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 9, 2024
Comment
Well, love getting some good news! Mayo review of my local CT compared to Mayo scans...
https://connect.mayoclinic.org/comment/1018938/
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Discussion:
Statistics on progression free survival while on SSA / Lanreotide
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 19, 2024
Comment
@helloitsme Lean on all of us for help, many of us have been on this journey...
https://connect.mayoclinic.org/comment/851636/
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Discussion:
Just diagnosed: Metastatic NETs. Treatment?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 29, 2023
Comment
@badi I'm a 59 year old female, and I, too, am Stage IV Carcinoid. My original...
https://connect.mayoclinic.org/comment/822156/
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Discussion:
Stage 4 Carcinoid tumor: What treatments have you had?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 7, 2023
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