Neuroendocrine Tumors (NETs) Support Group

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Thank you! It's been like a story with different points of view. The radiation oncologist has...

https://connect.mayoclinic.org/comment/819000/

Discussion: NETs: Competing Pathologies--how to sort it all out?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2023

Comment

Happy to have found this support group! I have a near 6 cm paraganglioma from my...

https://connect.mayoclinic.org/comment/810104/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 11, 2023

Comment

I take cosentyx for arthritis which I sometimes wonder if this could be causing my NET...

https://connect.mayoclinic.org/comment/805017/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

Comment

Hello, I have NET related pancreatic cancer. My mother died of pancreatic cancer which was diagnosed...

https://connect.mayoclinic.org/comment/804523/

Discussion: Gynecologic neuroendocrine metastasized to lungs: Need a specialist

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

Comment

We live in Orlando Florida. Mom came to the ER of Orlando Health Hospital thinking she...

https://connect.mayoclinic.org/comment/804283/

Discussion: Gynecologic neuroendocrine metastasized to lungs: Need a specialist

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

Comment

I would encourage you to become your best advocate. This is done by educating yourself in...

https://connect.mayoclinic.org/comment/802379/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

Comment

Hello @smart1, I'm glad that @colleenyoung tagged me for this discussion. As I've had three surgeries...

https://connect.mayoclinic.org/comment/753806/

Discussion: Need help with diet after a hemicolectomy....

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2022

Comment

@rowlandsb, I have some options for your daughter. She is welcome to join Mayo Clinic Connect...

https://connect.mayoclinic.org/comment/744223/

Discussion: Support for Young Adult with carcinoid tumor on ovary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2022

Comment

I had some pain around my back and side, but that is about it. The chemo...

https://connect.mayoclinic.org/comment/834197/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

Comment

Hello. My 16 year old son was diagnosed with metastatic PNETs last November at Mayo in...

https://connect.mayoclinic.org/comment/152968/

Discussion: Use of Adrenaline/Epinephrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2017

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