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Discussions (191)
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Comment
It's been awhile, but I wanted to update each of you kind souls on my Merkel...
https://connect.mayoclinic.org/comment/847355/
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Discussion:
Merkel cell-radiation effective on chest-new 2 cm spot on liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 22, 2023
Comment
Thanks for your post. Can you tell me how old your wife is please? I had...
https://connect.mayoclinic.org/comment/1075303/
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Discussion:
newly diagnosed pNET on tail of pancreas
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 26, 2024
Comment
Absolutely, I apologize for not explaining it better. At our initial diagnosis of NETwe we’re terrified...
https://connect.mayoclinic.org/comment/933208/
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Discussion:
Diagnosed with Stage 4 pNET: What should I know?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 20, 2023
Comment
I agree. Im 55yrs old. I was 185lbs when i started my once a month Lanreotide...
https://connect.mayoclinic.org/comment/860207/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 15, 2023
Comment
I had a follow up with the Oncologist earlier this week. I inquired about a NET...
https://connect.mayoclinic.org/comment/835888/
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Discussion:
Newly diagnosed-Primary Malignant Neuroendocrine of Lung
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 1, 2023
Comment
size doesn't really matter, it depends more on the type of cancer in the lung. They...
https://connect.mayoclinic.org/comment/815650/
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Discussion:
What tumor size is typical for removing part of the lung?
Support Group:
Lung Cancer
Posted: Feb 22, 2023
Comment
Hello Tom: - many thanks The term "somatostatin receptor type 2A": I read about this in...
https://connect.mayoclinic.org/comment/808601/
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Discussion:
PRRT has been approved by the FDA Jan 26, 2018, as expected
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 9, 2023
Comment
Teresa: My wife Sharon has recently had a C/T which showed additional lesions in the liver...
https://connect.mayoclinic.org/comment/800327/
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Discussion:
Interested in hearing people's experiences with PRRT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 22, 2023
Comment
After 7 cycles of the above chemo (pills) treatment, our Cancer Care Team at Froedert Hospital...
https://connect.mayoclinic.org/comment/781681/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 6, 2022
Comment
Hello @cottagepeople! My pancreatic NET was found during an EUS for a liver biopsy! I was...
https://connect.mayoclinic.org/comment/775334/
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Discussion:
Investigations for pancreatic lesions, NETs? Confused and concerned
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 20, 2022
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