Neuroendocrine Tumors (NETs) Support Group

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Comment

I have just returned from my week at Mayo so I wanted to post a quick...

https://connect.mayoclinic.org/comment/593410/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2021

Comment

I just wanted to add that a ki-67 of 4% is fairly low, indicating that it...

https://connect.mayoclinic.org/comment/1331244/

Discussion: Neuroendocrine tumor pancreatic tail

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20 10:58am

Comment

I'm sorry you're going through this. I know it's frustrating when the first line of defense...

https://connect.mayoclinic.org/comment/1326321/

Discussion: Help understand interval progression

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13 10:29am

Comment

I'm being treated at IHC Oncology in Utah. My oncologist specializes in NETS and was educated...

https://connect.mayoclinic.org/comment/1167738/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2024

Comment

Hello! Welcome to the ' zebra club' :). I had somewhat complicated case , as had...

https://connect.mayoclinic.org/comment/1074310/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2024

Comment

First, your husband is fortunate to have you supporting him. Second - there are so many...

https://connect.mayoclinic.org/comment/1022928/

Discussion: My husband has had his second PRRT and is doing well!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2024

Comment

Cobraman: Hi! I received diagnosis of small intestine (duodenum) NET tumor that had metastasized to liver...

https://connect.mayoclinic.org/comment/868984/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 30, 2023

Comment

A couple of immediate suggestions, as we have all fought this battle for NET's. There is...

https://connect.mayoclinic.org/comment/856394/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

Comment

Thank you both for the very helpful responses! I was able to meet with an oncologist...

https://connect.mayoclinic.org/comment/755235/

Discussion: Questions on Recurrence & Likelihood of Multiple NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2022

Comment

I was told by my Sutter Health docs that I had "benign gastric neuroendocrine carcinoid tumor,"...

https://connect.mayoclinic.org/comment/1172008/

Discussion: How many doctors did you see to get to your NETS diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2024

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