Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,626 total results

Comment

While I haven’t been diagnosed with DIPNECH I am 2 years into my treatment journey living...

https://connect.mayoclinic.org/comment/1070929/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19 11:43am

Comment

Welcome, @canuk! As someone living with NETs for over 13 years, you will have a lot...

https://connect.mayoclinic.org/comment/1070890/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19 11:03am

Comment

Being the "healthiest sick guy he knows!" is quite the compliment! Congratulations on living well, in...

https://connect.mayoclinic.org/comment/1084151/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10 8:55am

Comment

I was 59 when I was diagnosed and 60 when I found I was at stage...

https://connect.mayoclinic.org/comment/1054505/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21 2:23am

Comment

The pain in the left arm would probably be depending on how the surgery goes. I...

https://connect.mayoclinic.org/comment/1108182/

Discussion: Sarcoidosis and Lung NET, upcoming surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19 9:38am

Comment

Hello. I understand your plight to find the right care. My wife has a grade 2,...

https://connect.mayoclinic.org/comment/877019/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Comment

Hi. I was very lucky. I didn’t have to have chemo or radiation. I just had...

https://connect.mayoclinic.org/comment/1046358/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6 1:12pm

Comment

That is very interesting what you said. I have had 3 cancers and although one try’s...

https://connect.mayoclinic.org/comment/232702/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 7, 2018

Comment

Thank you, Colleen, It is nice to have a connection with people on the same road....

https://connect.mayoclinic.org/comment/1075210/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26 2:59pm

Comment

Hi, thank you! Yes, I do intend to address all my side effect issues with the...

https://connect.mayoclinic.org/comment/1103497/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11 8:45am