Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,250 total results

Comment

I had neuroendocrine tumors in my small intestines. I had surgery in 2017, the surgeon removed...

https://connect.mayoclinic.org/comment/1110182/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2024

Comment

I had a very scary Saturday night, with the pain under my shoulder blade radiating through...

https://connect.mayoclinic.org/comment/1062606/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 5, 2024

Comment

Welcome to the NET site! Hope you find the group helpful and supportive. I don’t have...

https://connect.mayoclinic.org/comment/851281/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Comment

My husband was diagnosed with NETs 5 years ago, had surgery and had been followed every...

https://connect.mayoclinic.org/comment/851255/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Comment

First time here and would appreciate any info from folks with a similiar issue. I had...

https://connect.mayoclinic.org/comment/811885/

Discussion: Carcinoid tumor of the appendix.PET scan results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Comment

Hello, New here, found the group when searching NET on the Mayo Clinic website. My husband...

https://connect.mayoclinic.org/comment/800940/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 24, 2023

Comment

I wonder why the follow up at all with me if the so called scars on...

https://connect.mayoclinic.org/comment/775350/

Discussion: Investigations for pancreatic lesions, NETs? Confused and concerned

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2022

Comment

Hi, thanks for your reply to my post. So sorry to hear that your husband's pain...

https://connect.mayoclinic.org/comment/669792/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2022

Comment

He had stomach pain and diarrhea for 4 years (since 5th grade) and even after numerous...

https://connect.mayoclinic.org/comment/152971/

Discussion: Use of Adrenaline/Epinephrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2017

Comment

I had the dotonate PET Scan after CAT, MRI, liver biopsy. I also had primary partial...

https://connect.mayoclinic.org/comment/1257287/

Discussion: Diagnosing small bowel NETs with carcinoid syndrome

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13 5:12pm

Follow

8903

13 minutes ago

Digestive Health

Follow

16416

21 minutes ago

Cancer: Managing Symptoms

Follow

4936

33 minutes ago

Pancreatic Cancer

Follow

3122

33 minutes ago

Follow

7168

52 minutes ago