Neuroendocrine Tumors (NETs) Support Group

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Comment

5 months ago, I had a 'gut' feeling (no symptoms) and chose to pay for a...

https://connect.mayoclinic.org/comment/916496/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21, 2023

Comment

Hi, Pete. I've had a similar situation. I had a robotic surgery for my PNET in...

https://connect.mayoclinic.org/comment/817091/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2023

Comment

I was diagnosed in March 2018 with NETs in multiple locations after having a blockage in...

https://connect.mayoclinic.org/comment/807089/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

Comment

Hi @hopeful33250, I had this done as an outpatient procedure. It took two sessions. The first,...

https://connect.mayoclinic.org/comment/769013/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2022

Comment

I have NETS mets to the liver with unknown primary and underwent PRRT treatment at Mayo...

https://connect.mayoclinic.org/comment/767329/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2022

Comment

Hello @mkmm and welcome to Connect. I understand that you are interested in finding someone else...

https://connect.mayoclinic.org/comment/726846/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2022

Comment

No meds before Lanreotide. I have had yearly CAT scans. The annual scan this year showed...

https://connect.mayoclinic.org/comment/1171345/

Discussion: Experience w/ watch and wait approach for metastatic liver tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2024

Comment

Hi, Thank you for you reply. I have a grade 2 very slow growing. But my...

https://connect.mayoclinic.org/comment/1321091/

Discussion: PNET in Tail of Pancreas, Portal and Splenic Veins

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5 6:39pm

Comment

@sophiarose: I am awaiting my 4th PRRT early December 2024. How is your affected arm? What...

https://connect.mayoclinic.org/comment/1161212/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2024

Comment

I had neuroendocrine tumors in my small intestines. I had surgery in 2017, the surgeon removed...

https://connect.mayoclinic.org/comment/1110182/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2024

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