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Discussions (190)
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Comment
@hollywood817 I appreciate all of your updates as you go through various treatments. Regarding the cough,...
https://connect.mayoclinic.org/comment/866925/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 26, 2023
Comment
I found out 3 years ago that I have net cancer. Originated in small intestines and...
https://connect.mayoclinic.org/comment/848467/
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Discussion:
Differentiating Carcinoid syndrome from MCAS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 24, 2023
Comment
When I said that his digestion is normal, something in my brain is nagging me because...
https://connect.mayoclinic.org/comment/817699/
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Discussion:
Has anyone had referred shoulder pain in post pancreatectomy?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 26, 2023
Comment
In reply to k8lyn23, Hi I had mentioned the LACNET which is a very good Los...
https://connect.mayoclinic.org/comment/815722/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 22, 2023
Comment
I mand hopes et with an oncologist yesterday. My report: Small tumors in pelvic/abdominal region and...
https://connect.mayoclinic.org/comment/812958/
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Discussion:
Long Time Survivor With Concerns re Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 17, 2023
Comment
I have carcinoid cancer stage 4 diagnosed 2 years ago with tumors spread to liver and...
https://connect.mayoclinic.org/comment/110437/
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Discussion:
Carcinoid Syndrome & Autoimmune Diseases.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 13, 2016
Comment
@hollywood819: thank you for your post- this info will help many of us! I have a...
https://connect.mayoclinic.org/comment/1206751/
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Discussion:
Living with Neuroendocrine NETS, any advice?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 8 11:18am
Comment
This can be so frustrating. Without symptoms, but an instinct, I chose to pay for an...
https://connect.mayoclinic.org/comment/1259307/
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Discussion:
Diagnosing small bowel NETs with carcinoid syndrome
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 16 9:44am
Comment
I had the Y90 In August of 2022 at University of Michigan as a follow up...
https://connect.mayoclinic.org/comment/1055893/
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Discussion:
Updating about My Lanreotide Injections & CT Scan
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 23, 2024
Comment
Has debulking surgery ever been suggested for your sister? I had that plus gallbladder removal as...
https://connect.mayoclinic.org/comment/935416/
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Discussion:
Carcinoid syndrome; NET not found
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 24, 2023
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