Neuroendocrine Tumors (NETs) Support Group

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Comment

I recently had a bland embolization for liver metastasis 5 weeks ago They did my right...

https://connect.mayoclinic.org/comment/814539/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

Comment

@crmom Welcome to Mayo Connect. First of all, take a deep breath in and slowly exhale....

https://connect.mayoclinic.org/comment/1332303/

Discussion: Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21 8:59pm

Comment

hi I am from Far North Queensland Australia 3 years ago I found out I had...

https://connect.mayoclinic.org/comment/1312071/

Discussion: Any one have experience with Dr J Maxwell (surgical oncologist) at MD

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24 4:15pm

Comment

Hi! My cancer has also metastasized to my liver and I get Octreotide injections every month...

https://connect.mayoclinic.org/comment/1196332/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 24, 2024

Comment

@robin5: Hi! I was diagnosed NET small intestine primary with liver metastases, grade1, well-def, stage 4,...

https://connect.mayoclinic.org/comment/1324502/

Discussion: Lanreotide side effects: diarrhea constipation, what to do?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10 5:29pm

Comment

Hopefully there is someone out there still monitoring this. I have chronic NET that started in...

https://connect.mayoclinic.org/comment/1171106/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2024

Comment

I was diagnosed 17 months ago with a metastatic stage 4, grade 2-3 small intestinal NET....

https://connect.mayoclinic.org/comment/1165976/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2024

Comment

I was diagnosed with NETs in the liver December 2022, Had a PET scan to determine...

https://connect.mayoclinic.org/comment/1147007/

Discussion: After initial tests/consults at Mayo: When does NETs treatment start?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2024

Comment

Hello! I just finished my 6th round of Lutetium LU-177 dotatate as part of the Compose...

https://connect.mayoclinic.org/comment/943115/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2023

Comment

I did have a biopsy in Dec 2022. It was very painful since the IR said...

https://connect.mayoclinic.org/comment/901227/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2023

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