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Discussions (190)
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Comment
Hello Tommy. How are you today Buddy. Can you tell me what CAPTEM is because I...
https://connect.mayoclinic.org/comment/1372188/
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Discussion:
My doctors know nothing
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 16 6:47pm
Comment
Hi I was diagnosed with a malignant insulinoma last July. The tumor originated in my pancreas...
https://connect.mayoclinic.org/comment/901833/
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Discussion:
Anyone with an insulinoma have only therapies instead of surgery?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 25, 2023
Comment
Hi! I just came out of the hospital yesterday. Had extensive distal pancreatectomy, spleen and gall...
https://connect.mayoclinic.org/comment/808230/
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Discussion:
What topics do you want for the Neuroendocrine Support Group?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 8, 2023
Comment
My wife @kim1965 was diagnosed with NET on tail of pancreas and numerous tumors on liver...
https://connect.mayoclinic.org/comment/802307/
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Discussion:
Just diagnosed with pancreatic NET stage 1
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 27, 2023
Comment
I was diagnosed in 2002 and mine was already metastasized to liver and lymph nodes. I...
https://connect.mayoclinic.org/comment/101985/
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Discussion:
Carcinoid cancer: Want to meet others
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 11, 2016
Comment
You will find lots of support on this site for insulinomas. Hope it is a helpful...
https://connect.mayoclinic.org/comment/1267607/
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Discussion:
Pancreatic NETs: Looking to connect with anyone with insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 26 7:48pm
Comment
Hi Sunshyn, may I knows 3 times PET scans within a period of how long? Any...
https://connect.mayoclinic.org/comment/1277034/
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Discussion:
High or Fluctuating Chromogranin A Level: What does it mean?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 8 10:07am
Comment
Thank you for your reply and all the information. I'm so sorry that your son is...
https://connect.mayoclinic.org/comment/1219950/
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Discussion:
Liver masses found on CT Scan
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 23 4:43pm
Comment
My heart goes out to all of use!! Dealing with NETs is a struggle I have...
https://connect.mayoclinic.org/comment/1113078/
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Discussion:
GI Net stage 4 advanced: Is it incurable?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 28, 2024
Comment
Exactly. Neck to pelvis. I have had kidneys and liver issues for a while. Out of...
https://connect.mayoclinic.org/comment/893469/
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Discussion:
SDHB Positive and Ga-68 Dotatate Scan question.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 10, 2023
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