Neuroendocrine Tumors (NETs) Support Group

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Hello fellow NET people. I am posting this as an update to my journey. After 9...

https://connect.mayoclinic.org/comment/1120051/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8, 2024

Comment

Hello! I have been there :). My pNet was discovered incidentally during a stroke work-up. Along...

https://connect.mayoclinic.org/comment/1061285/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3, 2024

Comment

I had my pancreatic cancer surgery in Mar 2020 and 5 months ago my scan showed...

https://connect.mayoclinic.org/comment/937482/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2023

Comment

Hello all! New to the group. Diagnosed with PNET that have metastasized to liver, bone, lung....

https://connect.mayoclinic.org/comment/890587/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 5, 2023

Comment

Welcome to one of the world's crappiest clubs. I'm in exactly your spot. Many elevated endocrine...

https://connect.mayoclinic.org/comment/884116/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Comment

@bnjncrew I was diagnosed with pNET with metastasis to the liver on 8/22/2022. I have completed...

https://connect.mayoclinic.org/comment/883888/

Discussion: Looking for information on CAPTEM treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Comment

@sophiarose, I had to stop taking octreotide due to an anaphylactic reaction. Due to significant issues...

https://connect.mayoclinic.org/comment/830375/

Discussion: Stopping Octreotide???

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

Comment

Hi @taneall I am in the same boat as your husband...grade 1, stage 4. It is...

https://connect.mayoclinic.org/comment/892998/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 9, 2023

Comment

Hello! I have pNET, diagnosed in December 2022 (started losing weight and had a stroke). During...

https://connect.mayoclinic.org/comment/1285736/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19 10:49pm

Comment

Hello Tommy. How are you today Buddy. Can you tell me what CAPTEM is because I...

https://connect.mayoclinic.org/comment/1372188/

Discussion: My doctors know nothing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 16 6:47pm

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