Neuroendocrine Tumors (NETs) Support Group

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Comment

My story is long and complicated! Symptoms for a couple years was diarrhea and gerd. Dr...

https://connect.mayoclinic.org/comment/1283729/

Discussion: New To NETS - Stage 4 / Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17 6:19am

Comment

You have been dealing with it longer than my wife has and seem to have a...

https://connect.mayoclinic.org/comment/867263/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

Comment

@tufan HI Tufan, I'm sorry to hear that. I hope soon you start getting good treatment...

https://connect.mayoclinic.org/comment/803389/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29, 2023

Comment

I have been on sandostatin since sept 2014. After extensive surgery to remove carcinoids on large...

https://connect.mayoclinic.org/comment/137527/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2017

Comment

Take a deep breath. There are lots of treatments for this cancer. I also have a...

https://connect.mayoclinic.org/comment/1219584/

Discussion: PNETs: What comes first? Surgery or try to shrink tumor with chemo?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23 9:27am

Comment

I have the same cancer as you. I have been on lanreotide almost a year. So...

https://connect.mayoclinic.org/comment/1106183/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2024

Comment

Hi. Sorry it took me so long to reply. I traveled on Saturday to a NET...

https://connect.mayoclinic.org/comment/163157/

Discussion: How to get a second opinion for an international patient??

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 15, 2017

Comment

Hi Joan So you are one of the 75-80 families they have in the study. I...

https://connect.mayoclinic.org/comment/163587/

Discussion: NIH clinical study looking for the gene causing carcinoid cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2017

Comment

I would guess we all go through a flurry of questions when initially diagnosed as the...

https://connect.mayoclinic.org/comment/1210439/

Discussion: PNETs: What comes first? Surgery or try to shrink tumor with chemo?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13 8:42am

Comment

Hi, I am reading your posts with interest. I have a 4x3 cm neuroendocrine metastatic tumor...

https://connect.mayoclinic.org/comment/1161774/

Discussion: Any tips about Cytoreductive, debulking Surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2024

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