Neuroendocrine Tumors (NETs) Support Group

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Comment

My experience: After discovery in Mar./2023 of a Grade 2, Small intestine NETs that metastasized to...

https://connect.mayoclinic.org/comment/1061064/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2024

Comment

I have liverNET cancer. I was diagnosed almost one year ago. I had 4 intense chemo...

https://connect.mayoclinic.org/comment/963078/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2023

Comment

Thanks for the prompt reply kim1965. I appreciate the additional information and will definitely discuss with...

https://connect.mayoclinic.org/comment/932814/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2023

Comment

Good morning to (hello it’s me) I was diagnosed Dec. 2022.. started in small intestine and...

https://connect.mayoclinic.org/comment/851326/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Comment

For both of the 72 hour fasts, the endocrinologist ordered. The first was done in the...

https://connect.mayoclinic.org/comment/807790/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2023

Comment

Hello, @netofliver8550 and welcome to Mayo Connect. I am sorry to hear about your liver NETs...

https://connect.mayoclinic.org/comment/333405/

Discussion: NET Stomach Discomfort

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2021

Comment

@retiredinkazoo - I have similar case - huge pNet on the tail ( 20x16 cm) plus...

https://connect.mayoclinic.org/comment/1075652/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2024

Comment

Nice to hear from a fellow Badger. Certianly hope all goes well for your wife's recovery...

https://connect.mayoclinic.org/comment/827544/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

Comment

Hopeful. I was diagnosed with Islet Cell Cancer, a neuroendricine adenoma carcinoma back in July of...

https://connect.mayoclinic.org/comment/90122/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2016

Comment

@hollywood817- Wow... you are going through a lot. Have you by chance had genetic testing done...

https://connect.mayoclinic.org/comment/796472/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2023

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