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Discussions (190)
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Comment
@firepowr if you don’t mind me asking, what have they said about yours that is considered...
https://connect.mayoclinic.org/comment/813521/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 18, 2023
Comment
I started with two rounds of capecitabine/temozolamide, which did not work at all. I switched to...
https://connect.mayoclinic.org/comment/767094/
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Discussion:
Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 29, 2022
Comment
Just wanted to comment on this thread as I kind of had a similar experience. In...
https://connect.mayoclinic.org/comment/633582/
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Discussion:
Possible NET with No Evidence of Tumor: Mediastinal Mass
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 7, 2021
Comment
Hi Jlu, first off, wow 10x10cm is a very big tumor. And you have lots going...
https://connect.mayoclinic.org/comment/857723/
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Discussion:
4 treatment options from my doctor, which one should I start with?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 10, 2023
Comment
@wkellett: Sorry to hear about your Mother’s discomfort. Rashes can appear for many reasons from strawberries...
https://connect.mayoclinic.org/comment/1369320/
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Discussion:
Rash side effect of Lutathera treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 12 5:07pm
Comment
Doctors are only human and do their best. With a less common condition like NET even...
https://connect.mayoclinic.org/comment/1373419/
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Discussion:
My doctors know nothing
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 18 11:00am
Comment
@helloitsme I had my pre chemo visit at Mayo Phoenix yesterday. Had some blood work done...
https://connect.mayoclinic.org/comment/851513/
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Discussion:
Just diagnosed: Metastatic NETs. Treatment?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 29, 2023
Comment
Hi, I'm new to the group but was reading about the NETs but I've never heard...
https://connect.mayoclinic.org/comment/1289033/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 24 2:30pm
Comment
I have Grade 1 stage 4 stage NET. The primary tumor was resected which was in...
https://connect.mayoclinic.org/comment/1216428/
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Discussion:
I am one year out with my diagnosis just finished 4th round of PRRT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 19 10:34am
Comment
My experience: After discovery in Mar./2023 of a Grade 2, Small intestine NETs that metastasized to...
https://connect.mayoclinic.org/comment/1061064/
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Discussion:
Updating about My Lanreotide Injections & CT Scan
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 2, 2024
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