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Discussions (190)
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Comment
I also concur with all of the above responses; I’m on year 3… Mine started as...
https://connect.mayoclinic.org/comment/1369496/
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Discussion:
Neuroendocrine Tumor
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 12 11:18pm
Comment
@mdethardt: Sorry to learn of your disappointing experiences. NETS presents differently in patients and requires a...
https://connect.mayoclinic.org/comment/1356548/
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Discussion:
NET tumor of pancreas (1 cm) diagnosed
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 26 2:29am
Comment
My NET was primary in lung (Jan 2023) 3 cm and metastasized to liver stage 1,...
https://connect.mayoclinic.org/comment/1350571/
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Discussion:
Carcinoid cancer: Want to meet others
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 17 5:33pm
Comment
You are welcome Teresa. I remember when I first got diagnosed 8/22/2022. Thee lead Doctor came...
https://connect.mayoclinic.org/comment/878357/
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Discussion:
My doctors know nothing
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 14, 2023
Comment
I’ve had 5 lanreotide shots and side effects less each time. Bloating is certainly one of...
https://connect.mayoclinic.org/comment/864105/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 21, 2023
Comment
In 2000 I had 2 pituitary tumor operations. Large tumor, but they had to take out...
https://connect.mayoclinic.org/comment/780134/
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Discussion:
Pituitary tumor symptoms: joint, muscle and body aches
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 2, 2022
Comment
Very interested in your second opinion that indicated you did not need the Octreotide injections. I...
https://connect.mayoclinic.org/comment/1171874/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 11, 2024
Comment
I was diagnosed with stage 4 advanced NET s primary in the small bowels, and metastasized...
https://connect.mayoclinic.org/comment/1112552/
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Discussion:
GI Net stage 4 advanced: Is it incurable?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 27, 2024
Comment
When my NET was diagnosed I was seeing an oncologist who immediately recommended chemo. At age...
https://connect.mayoclinic.org/comment/1030379/
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Discussion:
What questions should I ask oncologist tumor types and chemo treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 9, 2024
Comment
I am on Creon. It was prescribed to me after surgery. I had a very large...
https://connect.mayoclinic.org/comment/952517/
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Discussion:
Is everyone with pNETs on creon?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 23, 2023
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