Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,249 total results

Comment

On a Thursday a MRI on my prostrate showed suspicious cancer in the small intestine my...

https://connect.mayoclinic.org/comment/750473/

Discussion: Just got the news… stage 2 Carcinoid tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2022

Comment

Hello, My name is Dulce I was diagnosed with neuroendocrine cancer, which started in my duodenum...

https://connect.mayoclinic.org/comment/1198506/

Discussion: Anyone have experience with Acites?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2024

Comment

I have pancreatic NET , grade 2, stage 4 with liver metastases. Had debulking surgery on...

https://connect.mayoclinic.org/comment/1286484/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21 7:38am

Comment

@jenniferrasigade I'm so glad that you posted again. I hope that your surgery goes well. Tumors...

https://connect.mayoclinic.org/comment/971201/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2023

Comment

Hello @marifersitacastro and welcome to Mayo Clinic Connect! I appreciate you posting on behalf of your...

https://connect.mayoclinic.org/comment/612483/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29, 2021

Comment

Yes I had all those test including 5-H1AA urine test. A liver biopsy determined it was...

https://connect.mayoclinic.org/comment/1261353/

Discussion: Diagnosing small bowel NETs with carcinoid syndrome

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18 4:25pm

Comment

Has anyone tried Histotripsy? My husband has Cholangiocarcinoma and has done well with chemo and now...

https://connect.mayoclinic.org/comment/1149765/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Sep 30, 2024

Comment

I was diagnosed Dec. 2021 Tumors started in the small intestines and metastasized to the liver...

https://connect.mayoclinic.org/comment/1035643/

Discussion: What questions should I ask oncologist tumor types and chemo treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2024

Comment

What type of embolization did you have? Did it include radiation? I have been on lanreotide...

https://connect.mayoclinic.org/comment/977539/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2023

Comment

Very similar symptoms. Stomach pain, constant diarrhea, and always feeling sick that got progressively worse over...

https://connect.mayoclinic.org/comment/951274/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 21, 2023

Pancreatic Cancer

Follow

3122

6 minutes ago

Digestive Health

Follow

16414

8 minutes ago

Follow

7167

1 hour ago

Melanoma & Skin Cancer

Follow

581

2 hours ago

Follow

1644

2 hours ago