Neuroendocrine Tumors (NETs) Support Group

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Comment

My husband on 1/22/2022 was diagnosed 3 mm carcinoid tumor in his small intestines. We found...

https://connect.mayoclinic.org/comment/1003703/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

Comment

When I was diagnosed that my NET had come back 2 1/2 years after my liver...

https://connect.mayoclinic.org/comment/822159/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7, 2023

Comment

Hi Bob and Welcome! I read your other post regarding your insulinoma metastasis to the liver....

https://connect.mayoclinic.org/comment/806558/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2023

Comment

So relieved to find people with this frustrating disease process. I was beginning to think I...

https://connect.mayoclinic.org/comment/135496/

Discussion: The role of Tumor Marker Labs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2017

Comment

Okay this is where we are at now. My husband found out December 5th about his...

https://connect.mayoclinic.org/comment/1246998/

Discussion: Anyone have experience with cabozantinib (Cabometyx)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28 1:14am

Comment

@margaret12 I had fatigue and stomach issues (cramping and diarrhea) off and on beginning in August....

https://connect.mayoclinic.org/comment/812472/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

Comment

I also have Grade 2, KI - 67 of 6.6% Stage 4, metastasized from small intestines...

https://connect.mayoclinic.org/comment/1261758/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19 9:25am

Comment

Good morning, I am in a similar category of diagnosis. My lung tumor metastasis is now...

https://connect.mayoclinic.org/comment/1265413/

Discussion: Grade 3, poorly differentiated duodenal NET metastasized to liver-

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24 7:05am

Comment

Hi rockchick. Congrats on your successful surgery. I can understand that you are scanned out. I...

https://connect.mayoclinic.org/comment/813394/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

Comment

I am one of Colleen's tagged names. We all been where you are, I can only...

https://connect.mayoclinic.org/comment/1276724/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7 9:14pm

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