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Discussions (190)
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Comment
I had a modified Whipple in 2015 for insulinomas x 2. 3 months later had more...
https://connect.mayoclinic.org/comment/1267600/
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Discussion:
Pancreatic Cancer: Anyone have liver metastasis after Whipple?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 26 7:37pm
Comment
i actually feel good since surgery. I have had check up every 6 months since surgery....
https://connect.mayoclinic.org/comment/1065049/
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Discussion:
High or Fluctuating Chromogranin A Level: What does it mean?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 9, 2024
Comment
Hi, Did they do a PET scan ? I have stg 4 grade 1 Pnet and...
https://connect.mayoclinic.org/comment/902658/
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Discussion:
Should I want more treatment after pancreatic nets with lymph nodes?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 26, 2023
Comment
I did 6 months of chemo, every 2 weeks. I never heard of it shorting your...
https://connect.mayoclinic.org/comment/817375/
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Discussion:
NETs: Competing Pathologies--how to sort it all out?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 26, 2023
Comment
Teresa and @carcinoid, Dr Anthony told me the 24-hr urine test was not helpful for rectal...
https://connect.mayoclinic.org/comment/184538/
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Discussion:
Carcinoid Cancer and working
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 20, 2018
Comment
@smdoonan Your last sentence about consistently done at the same lab is probably the important factor....
https://connect.mayoclinic.org/comment/179374/
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Discussion:
CGA (Chromogranin) results from different labs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 20, 2018
Comment
Hello, I was diagnosed about 2 1/2 years ago, primary tumor was identified in the small...
https://connect.mayoclinic.org/comment/1317375/
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Discussion:
Neuroendocrine Carcinoma with Liver Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 31 2:20pm
Comment
Hello @physedr and welcome to the NETs support group on Mayo Connect. I am glad that...
https://connect.mayoclinic.org/comment/1076299/
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Discussion:
Neuroendocrine Carcinoma with Liver Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 28, 2024
Comment
Thank you for sharing. my husband has P-NET. and was getting Sandostatin shots monthly, they gave...
https://connect.mayoclinic.org/comment/853060/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 2, 2023
Comment
Thanks for the reply Scott. I too am having a 6 mos post surgery follow up...
https://connect.mayoclinic.org/comment/847654/
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Discussion:
Has anyone chosen the Watch and Wait and regretted that choice?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 22, 2023
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