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Discussions (128)
Comments (1,498)
Comment
Hello! My name is Karla and I live in SW MO near Branson. I’m 52 years...
https://connect.mayoclinic.org/comment/787752/
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Discussion:
Anyone out there have PNET experiences and outcomes to share?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 22, 2022
Comment
Hello, Thanks for reaching out. Truthfully? I am lost. I think I am okay, other than...
https://connect.mayoclinic.org/comment/758341/
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Discussion:
Paraganglioma / Carotid Body Tumor Question
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 7, 2022
Comment
Wow! Let me saw that I was treated like a rock star at Mayo in Jacksonville....
https://connect.mayoclinic.org/comment/770718/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 8, 2022
Comment
Thank you and congratulations on living with this monster. I am USUALLY an upbeat optimistic person...
https://connect.mayoclinic.org/comment/881074/
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Discussion:
Diagnosed with Stage 4 pNET: What should I know?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 19, 2023
Comment
I have been dealing with carcinoid tumors for 19 and a half years and am a...
https://connect.mayoclinic.org/comment/772394/
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Discussion:
Prognosis for Metastasized NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 12, 2022
Comment
After a lot of tests, scans and different doctors over the course of the last year,...
https://connect.mayoclinic.org/comment/912620/
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Discussion:
Anyone with an insulinoma have only therapies instead of surgery?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 14, 2023
Comment
Thank you! I was going to attend the zoom last night but ended up being in...
https://connect.mayoclinic.org/comment/907702/
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Discussion:
Anyone with an insulinoma have only therapies instead of surgery?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 4, 2023
Comment
In 2019 I had to have a pet scan because I was having liver issues -...
https://connect.mayoclinic.org/comment/1056651/
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Discussion:
Lung nodule could be slow growing carcinoid: Watch and wait is scary
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 24 7:03pm
Comment
I was diagnosed with Carcinoid Cancer with Carcinoid Syndrome in 2003. By that time I was...
https://connect.mayoclinic.org/comment/741205/
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Discussion:
Treatments for Carcinoids
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 24, 2022
Comment
I feel like he has just given up. He has constant diareaha that only slows down...
https://connect.mayoclinic.org/comment/873195/
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Discussion:
Diagnosed with Stage 4 pNET: What should I know?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 5, 2023
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