Neuroendocrine Tumors (NETs) Support Group

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Comment

Just went to the first oncologist appointment. After my doctor discussed with the hospital tumor board...

https://connect.mayoclinic.org/comment/812004/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Comment

I have been on Lanreotide 120mg since April 2023. First few injections were with bad reaction...

https://connect.mayoclinic.org/comment/1211203/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14 9:34am

Comment

Hello, I was taking Everolimus 10mg for about 1 month then stopped when I became elegible...

https://connect.mayoclinic.org/comment/942523/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2023

Comment

@outlawcancer It was great to hear to you share your experience with your surgery. Would love...

https://connect.mayoclinic.org/comment/817467/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2023

Comment

I was diagnosed with NETs last year. My case is a bit unusual since it seems...

https://connect.mayoclinic.org/comment/804124/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

Comment

Hello @marilyn2525 I so appreciate the information you provided. I have had three surgeries for NETs...

https://connect.mayoclinic.org/comment/134694/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2019

Comment

Hi! I’m so sorry to hear about your husband’s diagnosis. I believe in asking as many...

https://connect.mayoclinic.org/comment/1201611/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 1 9:10am

Comment

Diagnosed in 2019 I’m now 65 have a pancreatic net that metastasis in the liver. Tumor...

https://connect.mayoclinic.org/comment/1110111/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2024

Comment

Jeannie, take a deep breath, you are among many of us that have gone down this...

https://connect.mayoclinic.org/comment/1068055/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14, 2024

Comment

My wife has a multi-disciplinary team with a NET Specialist, and even after all the treatment...

https://connect.mayoclinic.org/comment/1056767/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2024

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