Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi Nana120 I can relate to you. I am having my 3rd Lanreotide this week. I...

https://connect.mayoclinic.org/comment/940604/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

Comment

Hello, my husband was diagnosed with stage four metastatic PNET cancer last October. He has a...

https://connect.mayoclinic.org/comment/866675/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

Comment

Many factors to consider—grade of tumors, locations, whether well-differentiated or poorly differentiated. A close friend of...

https://connect.mayoclinic.org/comment/861020/

Discussion: Dying from car accident can cause death more so this cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Comment

I forgot to mention there are no support groups here because it’s somewhat secluded (like the...

https://connect.mayoclinic.org/comment/184514/

Discussion: Carcinoid Cancer and working

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2018

Comment

@harley4650 I found an article about the two west coast hospitals offering histotripsy -- second link....

https://connect.mayoclinic.org/comment/1047147/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7, 2024

Comment

My NET story is similar to yours--small intestines metastasized to liver. I get the same monthly...

https://connect.mayoclinic.org/comment/1321054/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5 5:27pm

Comment

Your story is similar to mine. I was diagnosed with pancreatic cancer stage 2 & liver...

https://connect.mayoclinic.org/comment/1332672/

Discussion: Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 22 11:22am

Comment

Funny story went to the hospital years ago and they never found anything other than an...

https://connect.mayoclinic.org/comment/1047775/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 9, 2024

Comment

How old are you? Why watch and wait? I had symptoms of GERD and rheumatoid arthritis...

https://connect.mayoclinic.org/comment/1077422/

Discussion: Anyone diagnosed with NET, Grade II of the esophagus/stomach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 29, 2024

Comment

My pNET is also grade 2 stage 4 with liver metastases. I had my 4th injection...

https://connect.mayoclinic.org/comment/875710/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9, 2023

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