Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,626 total results

Comment

Hello, My dad was recently diagnosed with a GI NET. We live in the US ....

https://connect.mayoclinic.org/comment/1010196/

Discussion: GI NET attached to pancreas supposedly non-producing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5 2:26pm

Comment

I just had my what has become a yearly as opposed to every three to six...

https://connect.mayoclinic.org/comment/854136/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

Comment

I got a second opinion from MD Anderson's Neuroendocrine research doctors who also recommended Everolimus. My...

https://connect.mayoclinic.org/comment/1118230/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5 10:05am

Comment

Hello @lovemyfamtopieces72 and welcome to the NETs Support Group on Mayo Connect. I see that two...

https://connect.mayoclinic.org/comment/1112748/

Discussion: GI Net stage 4 advanced: Is it incurable?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27 11:51am

Comment

I was diagnosed almost 2 years ago with NET primary pancreas that metastasized to liver(over 100)...

https://connect.mayoclinic.org/comment/859321/

Discussion: TACE Procedure: What is it like?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

Comment

Welcome to the group! Insulinoma diagnosis can be tricky. In brief, I was diagnosed in 2015...

https://connect.mayoclinic.org/comment/889522/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2023

Comment

Hello Audra, Let me introduce myself....I am Mary, and was diagnosed with Carcinoid Syndrome (with liver...

https://connect.mayoclinic.org/comment/184521/

Discussion: Carcinoid Cancer and working

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2018

Comment

Hello @jatx25 and welcome to Connect and the "NET world" as you so aptly describe it....

https://connect.mayoclinic.org/comment/753020/

Discussion: Questions on Recurrence & Likelihood of Multiple NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2022

Comment

Yes I have had one discovered about two years ago with a heart MRI. It was...

https://connect.mayoclinic.org/comment/907604/

Discussion: Has anyone had NETs metastasized to heart?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 4, 2023

Comment

Hello @gtassithomas I see that this is your first post in the NET discussion group. I...

https://connect.mayoclinic.org/comment/260957/

Discussion: Carcinoid syndrome symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2019

Pancreatic Cancer

Follow

2236

2 hours ago

Digestive Health

Follow

12630

2 hours ago

Visiting Mayo Clinic

Follow

4526

2 hours ago

Follow

5514

3 hours ago

Follow

1229

3 hours ago