Neuroendocrine Tumors (NETs) Support Group

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Comment

I eat banana pancakes once or 2 times a week ( 1egg, 1/4 cup of oats,...

https://connect.mayoclinic.org/comment/939571/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

Comment

Hello @wolf359 and welcome to the NETs support group on Mayo Connect. I so appreciate you...

https://connect.mayoclinic.org/comment/930465/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2023

Comment

Thanks! We got a CT scan earlier this week and met with our cancer team today....

https://connect.mayoclinic.org/comment/887433/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29, 2023

Comment

My husband was diagnosed 2 years ago after finding a 2” tumor pressing on his spinal...

https://connect.mayoclinic.org/comment/885643/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Comment

@kim1965 Hi kim1965 A lot has gone on since my last post. My tumor is stage...

https://connect.mayoclinic.org/comment/837243/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

Comment

Colleen, Thank you! I was concerned with the growth hormone because it does make his organs...

https://connect.mayoclinic.org/comment/675397/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2022

Comment

I couch any comment we 'we are all different' and the treatment strategies are diverse and...

https://connect.mayoclinic.org/comment/671329/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2022

Comment

Hello. I’m sorry to hear that you are dealing with recurrence. Do you mind sharing where...

https://connect.mayoclinic.org/comment/1242639/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21 10:33pm

Comment

I was diagnosed with a PNET in 11/2022. It is a well differentiated tumor of 1.3...

https://connect.mayoclinic.org/comment/971141/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2023

Comment

Hello. Diagnosed almost 2 years ago. Had one year of uncontrollable diarrhea. Diagnosed with IBS at...

https://connect.mayoclinic.org/comment/952145/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2023

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