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Discussions (190)
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Comment
Hello - one year ago August of ‘23 I was diagnosed with Acinar Pancreatic Cancer with...
https://connect.mayoclinic.org/comment/1166095/
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Discussion:
Anyone have Pancreatic Acinar Cell Carcinoma?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 1, 2024
Comment
Thanks for sharing, my experience was very similar (see below) additionally they removed the right side...
https://connect.mayoclinic.org/comment/1236619/
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Discussion:
I recently had surgery to remove NET in small intestine
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 14 9:11am
Comment
Hi Carrie! I am do sorry to hear your news and I completely empathize with your...
https://connect.mayoclinic.org/comment/1073202/
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Discussion:
Neuroendocrine Carcinoma with Liver Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 23, 2024
Comment
Please see questions in string below. I think some may have ventured off and begun answering...
https://connect.mayoclinic.org/comment/1316236/
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Discussion:
Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29
Support Group:
Pancreatic Cancer
Posted: May 30 6:44am
Comment
I just completed my last PRRT (Lutathera)treatment in May, I had a scan before my third...
https://connect.mayoclinic.org/comment/1324144/
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Discussion:
Advice for Preparations and Expectations on starting PRRT?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 10 9:03am
Comment
Hi! I have been receiving Octreotide injections once a month for about a year now. For...
https://connect.mayoclinic.org/comment/1196315/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 24, 2024
Comment
I also experience profuse sweating similar to hot flashes and weakness, I lay down or did...
https://connect.mayoclinic.org/comment/1235397/
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Discussion:
Has anyone chosen the Watch and Wait and regretted that choice?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 12 3:10pm
Comment
@vinnie694: to Vinnie and others on Lutathera PRRT infusions for NET tumor progression! I had Lutathera...
https://connect.mayoclinic.org/comment/1284269/
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Discussion:
NET in jejunum spread to liver: Treatment options?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 17 7:52pm
Comment
@colleenyoung Thank you so much for welcoming me and for your quick response and encouraging words....
https://connect.mayoclinic.org/comment/777322/
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Discussion:
Merkel cell-radiation effective on chest-new 2 cm spot on liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 25, 2022
Comment
I was diagnosed with Grade2 Stage IV metastasized from small intestines to liver. PET scan validated...
https://connect.mayoclinic.org/comment/1162526/
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Discussion:
NET on liver: Question about treatments when no symptoms
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 25, 2024
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