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Discussions (128)
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Comment
I just learned I have a prostate neuroendocrine tumor I did the urine test first by...
https://connect.mayoclinic.org/comment/756090/
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Discussion:
Just got the news… stage 2 Carcinoid tumors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 2, 2022
Comment
Digestion issues are different for everyone. I had about a yard of small intestine removed and...
https://connect.mayoclinic.org/comment/879118/
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Discussion:
NETs: Scheduled for small intestine resection: What to expect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 15, 2023
Comment
Thank you so much for your input. We are working with a team at Cancer Specialists...
https://connect.mayoclinic.org/comment/860243/
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Discussion:
Diagnosed with Stage 4 pNET: What should I know?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 15, 2023
Comment
Thank you for sharing your experience. As I read your story it seemed just as complicated...
https://connect.mayoclinic.org/comment/834742/
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Discussion:
Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 30, 2023
Comment
Hi All, I too see Dr. Sonbol at Mayo Arizona and love him and the team....
https://connect.mayoclinic.org/comment/1123480/
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Discussion:
Everolimus for multiple Neuroendocrine tumors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 14 9:38am
Comment
Hi: I completed the full 4 PRRT treatments in January of this year and had my...
https://connect.mayoclinic.org/comment/728904/
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Discussion:
PRRT for NETs: Questioning whether I should continue or not
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 20, 2022
Comment
Hello @carrie55 and welcome to Connect. I'm sorry to hear of this new diagnosis and the...
https://connect.mayoclinic.org/comment/753146/
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Discussion:
Neuroendocrine Carcinoma with Liver Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 23, 2022
Comment
Yes what Teresa said is helpful. Hang in there🙏. I too had similar symptoms and lost...
https://connect.mayoclinic.org/comment/943329/
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Discussion:
NETs: Scheduled for small intestine resection: What to expect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 6, 2023
Comment
Hello @kaforester3, I can understand your concerns, especially when your doctor does not give you much...
https://connect.mayoclinic.org/comment/308776/
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Discussion:
High or Fluctuating Chromogranin A Level: What does it mean?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 25, 2020
Comment
@mbg20 my primary oncologist is Dr Dar (primary office is in Leesburg, VA). Dar was recommended...
https://connect.mayoclinic.org/comment/820306/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 3, 2023
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