Neuroendocrine Tumors (NETs) Support Group

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Greetings....I am still standing and living a normal life at 85 with my disease in the...

https://connect.mayoclinic.org/comment/801669/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2023

Thank you for your comforting words. It has been a discouraging journey and over the years...

https://connect.mayoclinic.org/comment/791937/

Discussion: Frustrated with the medical establishment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3, 2023

@outlawcancer, It sounds like you have been working on this diagnosis for a while, now. This...

https://connect.mayoclinic.org/comment/782731/

Discussion: Anyone out there have PNET experiences and outcomes to share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2022

I had a lobectomy. They did not crack my ribs to do it. They did it...

https://connect.mayoclinic.org/comment/775975/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

I live in Kissimmee I had made multiple trips and tomorrow need to stay at Jacksonville...

https://connect.mayoclinic.org/comment/772860/

Discussion: Might we have to Travel Twice to Mayo?

Support Group: Visiting Mayo Clinic

Posted: Nov 14, 2022

When reading your active surveillance that makes sense if my health and tumor are being watched....

https://connect.mayoclinic.org/comment/698101/

Discussion: Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma,

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2022

Hello All: For those of you who have had surgery for NETs in the thoracic area...

https://connect.mayoclinic.org/comment/631580/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 31, 2021

Hello @ahtaylor Thank you for your response to both my question as well as responding to...

https://connect.mayoclinic.org/comment/607498/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2021

I live in Southern California and cannot find a specialist who Is experienced as the condition...

https://connect.mayoclinic.org/comment/607402/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2021

When I had my tumor removed, there was no talk about any other surgery than open....

https://connect.mayoclinic.org/comment/134718/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2021

Thank you for your response. Without going into a lot of detail right now this is...

https://connect.mayoclinic.org/comment/334984/

Discussion: Metanephrines and the beginning stages (in a way) of a tumor search

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2021

UPDATE On January 6 we met with the oncologist. They feel that it is likely that...

https://connect.mayoclinic.org/comment/329144/

Discussion: Small bowel NET and colon cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8, 2021

I ve had awareness of my PANCREATIC NET for a year plus. Rare, with established core...

https://connect.mayoclinic.org/comment/257018/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2020

Hope definitely is it, when I first was diagnosed with the thyroid cancer I met this...

https://connect.mayoclinic.org/comment/284792/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 23, 2019

Thanks so much! It was a really great experience and I loved meeting Dr. THor- he...

https://connect.mayoclinic.org/comment/271261/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2019

My dogs are my very dearest friends and companions. Wouldn’t have made it as well as...

https://connect.mayoclinic.org/comment/233079/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Sep 20, 2019

I found I had less tolerance for meaningless small talk. I never did the why me...

https://connect.mayoclinic.org/comment/233075/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Sep 19, 2019

Welcome to the NETs group on Mayo Clinic Connect, @amandafl. This is so exciting to have...

https://connect.mayoclinic.org/comment/134541/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2019

I am 77 ......energy comes in waves....some times more spoons, other times its an effort to...

https://connect.mayoclinic.org/comment/176723/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 9, 2019

I have a Neuro Endocrine Tumor of the Pancreas. 9-6-2019 second CT Scan SHOWED NEGATIVE GROWTH...

https://connect.mayoclinic.org/comment/275675/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8, 2019

Thyroid Cancer

1632

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Digestive Health

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Pancreatic Cancer

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Breast Cancer

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Melanoma & Skin Cancer

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