Neuroendocrine Tumors (NETs) Support Group

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@eewtao- You have been through a lot. And you are absolutely correct. Recurrence is a different...

https://connect.mayoclinic.org/comment/232713/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Hi, Thank you so much for this long share. I really appreciate it. Your husband struck...

https://connect.mayoclinic.org/comment/1231602/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 1:13pm

"The Drs assured me I had no cancer and thought that CgA decrease was insignificant and...

https://connect.mayoclinic.org/comment/1312066/

Discussion: Small Bowel Neuroendocrine Cancer, Metastasis to Mesentery Recurrence?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24 3:53pm

Thanks for writing back! Next week I get my first scan since I was diagnosed and...

https://connect.mayoclinic.org/comment/1321134/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5 8:03pm

Hello @gg66 and welcome to Mayo Connect. I completely understand your wanting to chat with others...

https://connect.mayoclinic.org/comment/1189781/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2024

@netpatient Hello Shakirat and to all members. I missed this live presentation as well, so I'm...

https://connect.mayoclinic.org/comment/682973/

Discussion: What’s next: Seeking advice on how to navigate diagnosis appointments?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21, 2022

I agree, having a positive attitude & outlook on life is key! I try to live...

https://connect.mayoclinic.org/comment/1275181/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5 8:56pm

Why did you have a CT/Pet in the first place? Did or do you have symptoms?...

https://connect.mayoclinic.org/comment/1264349/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22 4:49pm

My tumor was about the size of a twinkie with arms constricting my small bowel in...

https://connect.mayoclinic.org/comment/1307762/

Discussion: Deciding on best procedure: Your thoughts?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19 12:28pm

I’m so sorry you’re going through this. I know it’s scary and there’s so much to...

https://connect.mayoclinic.org/comment/1112706/

Discussion: GI Net stage 4 advanced: Is it incurable?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2024

I have the same problem as you and always have low blood sugar syndrome. I tried...

https://connect.mayoclinic.org/comment/1088375/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2024

Hi @dipnech67 I would be happy to speak with you. I just sent you a private...

https://connect.mayoclinic.org/comment/1055386/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2024

Gig666, I am somewhat appalled that your docs didn't give you more options rather than just...

https://connect.mayoclinic.org/comment/1054944/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2024

Thank you for getting back to me. UMASS. Net specialist are not helpful. 74 yrs old,...

https://connect.mayoclinic.org/comment/1054704/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2024

From reading through the postings you may want to visit Ronny Allen’s website. He lives in...

https://connect.mayoclinic.org/comment/1046292/

Discussion: Atypical carcinoid tumour of the lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2024

My chemotherapy was difficult to deal with, it wasn’t immediate but accumulative effects were challenging. Fatigue,...

https://connect.mayoclinic.org/comment/1025991/

Discussion: Atypical pulmonary carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2024

After rangaling for a year between removing my left and living with tumors(3, 1 calcified), I've...

https://connect.mayoclinic.org/comment/1003342/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

Hello, I have a stage 3 lung NET. I found a lot of good information on...

https://connect.mayoclinic.org/comment/998253/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2024

Thank you. So you live in the Bay Area? I am having a consult with Natalie...

https://connect.mayoclinic.org/comment/992623/

Discussion: Anyone have neuroendocrine tumor (NETs) of the breast?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2024

That sounds like a tough recovery. I live about 1 1/2 to 2 hours from Mayo...

https://connect.mayoclinic.org/comment/990195/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Jan 2, 2024

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