Neuroendocrine Tumors (NETs): Discussions | Page 93

Margaret, I am so sorry you are going through this. If there are some groups where...

https://connect.mayoclinic.org/comment/232854/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Feb 7, 2019

I just left Mayo, Rochester on Monday. My insulinoma was removed and so far so good....

https://connect.mayoclinic.org/comment/134666/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 26, 2018

I was diagnosed with insulinoma last week based on an outpatient fasting test. I only needed...

https://connect.mayoclinic.org/comment/134660/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2018

Great discussion topic, Maureen. I cross-posted the thread in the other cancer groups too. I'd like...

https://connect.mayoclinic.org/comment/196542/

Discussion: Overmedication with cancer and other conditions

Support Group: Head & Neck Cancer

Posted: Apr 17, 2018

Hello. My 16 year old son was diagnosed with metastatic PNETs last November at Mayo in...

https://connect.mayoclinic.org/comment/152968/

Discussion: Use of Adrenaline/Epinephrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2017

Yes, a support group would be good even if you connected with them by email or...

https://connect.mayoclinic.org/comment/101986/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11, 2016

when I was dx'ed initially we were living in north central North Dakota. It was a...

https://connect.mayoclinic.org/comment/85535/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2015

I was diagnosed December 28th, 2024. I was having chronic pain on my left side. Went...

https://connect.mayoclinic.org/comment/1227882/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 3:58pm

Hello, I am feeling fine except for a 20 lb weight gain that seemed to happen...

https://connect.mayoclinic.org/comment/1242864/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22 9:11am

Me. 2.5 years since diagnosis and not only surviving, I am thriving. I am but a...

https://connect.mayoclinic.org/comment/1225015/

Discussion: 68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29 8:34pm

Hello @lynn99 and welcome to Mayo Connect. When you say, "It's pretty scary" most of us...

https://connect.mayoclinic.org/comment/998813/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jan 17, 2024

@cindypat1 The life expectancy data is flawed. It includes the very old, those diagnosed very late...

https://connect.mayoclinic.org/comment/1208295/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 10:43am

I 100% agree with others, 2nd opinion with a NET specialist, and even better would be...

https://connect.mayoclinic.org/comment/1294485/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1 5:12pm

I wish you the best too. I live as normal a life as I can, any...

https://connect.mayoclinic.org/comment/1287697/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22 4:23pm

@cordelia73 - my tumors have been stable, no new growth for the last 2 yrs. There...

https://connect.mayoclinic.org/comment/1287223/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22 12:42am

I have this condition also. Are you having symptoms? How was this discovered? It seems everybody's...

https://connect.mayoclinic.org/comment/1203938/

Discussion: Can anyone share information about NET in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4 4:54pm

I throw blankets and tops on and off. I live by myself so when I am...

https://connect.mayoclinic.org/comment/1203844/

Discussion: What does my dentist need to know about my NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4 2:35pm

Thank you for the helpful links! We’d love a second opinion and all the support we...

https://connect.mayoclinic.org/comment/1197999/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

I'd like to expand on info from @lindabees: Depending on the state and county in which...

https://connect.mayoclinic.org/comment/1184968/

Discussion: Disability and Medicare: Has anyone qualified for Medicare under 65?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 5, 2024

Hello @wilhelm and welcome to Mayo Connect. I appreciate your thoughtful comments about this rare disorder...

https://connect.mayoclinic.org/comment/1165843/

Discussion: Anyone have a paraganglioma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2024

Neuroendocrine Tumors (NETs) Support Group