Neuroendocrine Tumors (NETs) Support Group

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Hello how are you? I'm sorry you had to go through this. I tell you, my...

https://connect.mayoclinic.org/comment/1237580/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15 12:48pm

Santa Barbara is beautiful. I've lived all over southern California.

https://connect.mayoclinic.org/comment/1228166/

Discussion: Histotripsy near St. Louis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 3 12:00am

I am so sorry to hear about your son. The word cancer is very scary. If...

https://connect.mayoclinic.org/comment/1230250/

Discussion: Adrenocortical carcinoma (ACC) outcomes: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5 4:53pm

Most people have replied about CgA. I live in Uk and have grade 1, small bowel...

https://connect.mayoclinic.org/comment/1091150/

Discussion: What is a normal range for Chromogranin A test? Mine was 99 in 2021.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2024

Do you identify as a member of the LGBTQI community, are 50 years or older, and...

https://connect.mayoclinic.org/comment/912680/

Discussion: Mayo Clinic research survey: LGBTQI+ persons with a serious illness

Support Group: LGBTQIA Health

Posted: Aug 14, 2023

I’m sorry you’re going through this. We also lived in California when my husband was first...

https://connect.mayoclinic.org/comment/1205903/

Discussion: Hello. I am new here. My husband was recently diagnosed with NETs.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7 9:24am

Great question, and yes we are completely aware of the extent of immosuppressive drugs that are...

https://connect.mayoclinic.org/comment/1198319/

Discussion: Wondering if we are making the right choices in our NET fight.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

I’ve had excellent care! Been palliative care since diagnosis. I go to University of Michigan Medical...

https://connect.mayoclinic.org/comment/1190982/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2024

Everyone I consulted with--from UNM to NYU--said the only treatment for NET in breast is the...

https://connect.mayoclinic.org/comment/907122/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2023

https://ronnyallan.net/2022/09/28/living-with-cancer-5-tips-for-facing-things-you-cant-control/

https://connect.mayoclinic.org/comment/1291412/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 27 5:16pm

Wow I am sitting here wanting everyone to SURVIVE but unfortunately that won’t happen. I do...

https://connect.mayoclinic.org/comment/1285648/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19 6:23pm

It is my understanding that you need to understand the cellular structure of the problem and...

https://connect.mayoclinic.org/comment/772407/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2022

Every kind of NETS and their location and advance of tumors results in different prognosis for...

https://connect.mayoclinic.org/comment/1264718/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23 9:19am

Thank you!!! Right I’m four years strong in this now. I go to Georgia Cancer Specialist...

https://connect.mayoclinic.org/comment/1271324/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31 8:48pm

I had the same symptoms of sweating every day and fainting! Also, my digestive system was...

https://connect.mayoclinic.org/comment/1295067/

Discussion: What should I do? Carcinoid symptoms but no answers.

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2 12:40pm

Sounds like you're feeling really good, which is awesome. I suspect you can go to a...

https://connect.mayoclinic.org/comment/1221351/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25 11:29am

I'm in the same boat. Well differentiated, had small bowel resection, still have a mass and...

https://connect.mayoclinic.org/comment/1236191/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13 3:52pm

Hi vtn There are a lot of people that have had no additional growth or metastatic...

https://connect.mayoclinic.org/comment/859181/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

Where at in IL? I also live in IL & would be happy to share my...

https://connect.mayoclinic.org/comment/1316605/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 30 1:06pm

@mpt - I live in Syracuse. Dr.Mashaal Dhir is a hepatobilliary onco surgeon who did my...

https://connect.mayoclinic.org/comment/1322888/

Discussion: PNET in Tail of Pancreas, Portal and Splenic Veins

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8 10:26am

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