Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,247 total results

Comments (2,056)

Hello, my symptoms were dizziness, tiredness and some headaches. I live in Peru so my GP...

https://connect.mayoclinic.org/comment/176701/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2019

@susu2 @odette @merpreb, thanks for sharing your experiences. Susu, technically speaking hiccups are involuntary contractions of...

https://connect.mayoclinic.org/comment/265599/

Discussion: Have you ever had hiccups with or after chemotherapy?

Support Group: Cancer: Managing Symptoms

Posted: Jun 12, 2019

Hello Again. I was very hopeful that Afinitor would help. My oncologist was seeking a size...

https://connect.mayoclinic.org/comment/134282/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 15, 2019

Same here. Had colon cancer and had all my large intestine removed 3 yrs ago now...

https://connect.mayoclinic.org/comment/232851/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Feb 6, 2019

As crazy as this sounds, I did not think of taking anything. I live alone and...

https://connect.mayoclinic.org/comment/232840/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jan 17, 2019

I think now it's the fatigue that's getting to me. I still have literally no energy...

https://connect.mayoclinic.org/comment/232815/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jan 12, 2019

Welcome to Connect: I was diagnosed with Non Small Cell Adnocarcinoma 11 year ago with a...

https://connect.mayoclinic.org/comment/134278/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2018

Teresa, this is where I got it from: https://health.usnews.com/health-news/managing-your-healthcare/cancer/articles/2011/08/09/cancer-and-me She has written books: Try this one...

https://connect.mayoclinic.org/comment/232763/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 10, 2018

Welcome @odikaflog to Mayo Connect. When I wrote "we" I was trying to include everyone, but...

https://connect.mayoclinic.org/comment/232752/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 9, 2018

Good morning Cindy- I am so glad that my blog has helped you feel like you...

https://connect.mayoclinic.org/comment/232710/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

That is very interesting what you said. I have had 3 cancers and although one try’s...

https://connect.mayoclinic.org/comment/232702/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 7, 2018

Hello, Thanks to each of you for the helpful info, I really appreciate your replies. I...

https://connect.mayoclinic.org/comment/134645/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2018

Hi Teresa My sister went to a hospital near her in Delaware. Not sure which one...

https://connect.mayoclinic.org/comment/163586/

Discussion: NIH clinical study looking for the gene causing carcinoid cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2017

@joannem Hello and welcome to Mayo Connect. Yes, carcinoids are an unusual type of cancer and...

https://connect.mayoclinic.org/comment/110438/

Discussion: Carcinoid Syndrome & Autoimmune Diseases.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 14, 2016

There is a support group in my state of residence, Minnesota. I have spenttime on that...

https://connect.mayoclinic.org/comment/101987/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11, 2016

Hi! I was dx'ed with Stage 4 melanoma in 2009. I was given 6 months to...

https://connect.mayoclinic.org/comment/85530/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2015

Living with NET with symptoms of flushing,diarrhea, tremors and profuse sweats. Had radiation chemotherapy and now...

https://connect.mayoclinic.org/comment/1196770/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 25, 2024

It depends on where you live .

https://connect.mayoclinic.org/comment/1158453/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Oct 17, 2024

Welcome, @mrsdit. Indeed. To help you meet other members living with merkel cell carcinoma, I moved...

https://connect.mayoclinic.org/comment/1073748/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: May 24, 2024

Thanks so much! I’m going to look at one respite care/assisted living facility this weekend -...

https://connect.mayoclinic.org/comment/1074103/

Discussion: What’s the best care option for live alone senior during radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24, 2024

Follow

7145

22 minutes ago

Cancer: Managing Symptoms

Follow

4914

48 minutes ago

Melanoma & Skin Cancer

Follow

561

1 hour ago

Digestive Health

Follow

16349

1 hour ago

Visiting Mayo Clinic

Follow

5932

2 hours ago