Neuroendocrine Tumors (NETs) Support Group

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Comments (1,772)

Hi. Good to hear from you. I will try to help. What I have done has...

https://connect.mayoclinic.org/comment/776368/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2022

Hello everyone. I have bilateral Pheochromocytoma's on both my adrenal glands. I live in Oregon. This...

https://connect.mayoclinic.org/comment/764174/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2022

Hi, its so good to meet someone going through the same thing. were you a patient...

https://connect.mayoclinic.org/comment/743510/

Discussion: Linear endocrine cells hyperplasia & Autoimmune Gastritis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 30, 2022

Hi, yes i have lost confidence in my former medical team for a dozen of reasons....

https://connect.mayoclinic.org/comment/740221/

Discussion: Linear endocrine cells hyperplasia & Autoimmune Gastritis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2022

Hi and thanks for your response. I have 3 people including the doctor say how there...

https://connect.mayoclinic.org/comment/739682/

Discussion: Linear endocrine cells hyperplasia & Autoimmune Gastritis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 20, 2022

My PCP ordered a 5HIAA based on his opinion that I have carcinoid syndrone. It came...

https://connect.mayoclinic.org/comment/721534/

Discussion: Looking for neuroendocrine tumor (NET) with carcinoid syndrome support

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 27, 2022

Welcome @laurell410. I look forward to learning more about you. What type of NETs do you...

https://connect.mayoclinic.org/comment/692346/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2022

@remi @jhilbish @cvb @lenorahaston @captain1950 @khauert @tomewilson @alphanumeric @gulzar @megansims @netpatient @kate12345 @amd12 @tatteesmom3 @elm60 I'm...

https://connect.mayoclinic.org/comment/681229/

Discussion: What’s next: Seeking advice on how to navigate diagnosis appointments?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2022

Hello to all of our NETs members, On Thursday, January 27, at noon (EST) there will...

https://connect.mayoclinic.org/comment/674672/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2022

Hi Steph, Do you know about the free Concierge Services at Mayo Clinic? You can get...

https://connect.mayoclinic.org/comment/610621/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2021

@tkubista, congrats on embracing life and living cancer free. When are your next scans? What does...

https://connect.mayoclinic.org/comment/329145/

Discussion: Small bowel NET and colon cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 18, 2021

As you may already know ( I did reply last week ) I had surgery at...

https://connect.mayoclinic.org/comment/134708/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2020

Hello all! I am new to this Mayo Connect and responding to sophiarose: no epi because...

https://connect.mayoclinic.org/comment/1207691/

Discussion: What does my dentist need to know about my NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9 1:11pm

@collielady Hello Faith, I'm sorry to hear that your family could not take advantage of the...

https://connect.mayoclinic.org/comment/275695/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 9, 2019

This issue of learning to live with a possible cancer recurrence is a very difficult one...

https://connect.mayoclinic.org/comment/233059/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Sep 17, 2019

@janlanderz how difficult it must be for both of you. Do you have a support group...

https://connect.mayoclinic.org/comment/233021/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 30, 2019

Thank you. Yes, I am creating a “new normal”, one that includes handling the treatment side...

https://connect.mayoclinic.org/comment/232996/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 14, 2019

I had somehow never seen this post until yesterday. I was diagnosed with stage 2A triple...

https://connect.mayoclinic.org/comment/232957/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jul 7, 2019

To All Members of the NET discussion group: For those of you living and/or visiting in...

https://connect.mayoclinic.org/comment/176717/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4, 2019

Hello, My name is Ristene and I was diagnosed with a glomus jugular paraganglioma on 1/10/19....

https://connect.mayoclinic.org/comment/244178/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2, 2019

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