Neuroendocrine Tumors (NETs) Support Group

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Comments (2,056)

Lenmon, I am sorry that you lost your husband to this terrible disease. We do need...

https://connect.mayoclinic.org/comment/826958/

Discussion: Where are they doing neuroendocrine cancer/lung research?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

I am so grateful for your response to my post,and the possible connection that we may...

https://connect.mayoclinic.org/comment/803945/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 30, 2023

Hello! Very naive here about where I have been and how concerned I should be. Maybe...

https://connect.mayoclinic.org/comment/758149/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2022

My 29 y.o. son was diagnosed w a 2.6 cm NET on his appendix following an...

https://connect.mayoclinic.org/comment/753126/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2022

Amen this rare disease can be very challenging but like you say we are still here...

https://connect.mayoclinic.org/comment/748499/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

Thank you for taking the time to respond, it is much appreciated. I will get her...

https://connect.mayoclinic.org/comment/744465/

Discussion: Support for Young Adult with carcinoid tumor on ovary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2, 2022

@phoebeghostwriter I'm really excited for you and others in our NET group to attend the Carcinoid...

https://connect.mayoclinic.org/comment/681226/

Discussion: What’s next: Seeking advice on how to navigate diagnosis appointments?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2022

Hi Phoebe! You have a couple of weeks until your appointment- it gives you time to...

https://connect.mayoclinic.org/comment/676540/

Discussion: What’s next: Seeking advice on how to navigate diagnosis appointments?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2022

I must say that I’m shocked! And sorry for such a disappointing visit. There are other...

https://connect.mayoclinic.org/comment/673733/

Discussion: Possible Mircoandenoma muscle wasting

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2022

Hi Phoebe! I think you are moving in the right direction, trying to get an appointment...

https://connect.mayoclinic.org/comment/669802/

Discussion: Possible Mircoandenoma muscle wasting

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2022

I'm hopeful that it is the cause but it seems like that totally depends on whichever...

https://connect.mayoclinic.org/comment/610058/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2021

Good morning Preeti, I have had 2 surgeries to remove a total of 11 insulinomas. Like...

https://connect.mayoclinic.org/comment/134707/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2020

I had a few joint aches, but primarily I lost muscularity. I couldn't do activities I...

https://connect.mayoclinic.org/comment/289833/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23, 2020

Hello @gaylejean Here is a website where you can find Carcinoid specialists by country and by...

https://connect.mayoclinic.org/comment/134554/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2019

My name is André. My caretaker and best friend, Stephanie (wifey) live near the Sanford/Orlando Airport....

https://connect.mayoclinic.org/comment/134542/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2019

@merpreb Haven't posted for a while, but have been reading the posts. My CT scan--first one...

https://connect.mayoclinic.org/comment/233026/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 31, 2019

I have just started seeing a therapist at our Hospice Centre... the therapists at the cancer...

https://connect.mayoclinic.org/comment/233023/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 31, 2019

becsbuddy.. thank you for seeing the post for the positive message... I am trying to live...

https://connect.mayoclinic.org/comment/233018/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 29, 2019

I have Glioblastoma grade 4...so I also have to remind myself to live in the moment....

https://connect.mayoclinic.org/comment/233001/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 28, 2019

I am experiencing all the emotions that everyone here is experiencing... I have Stage 4 inoperable...

https://connect.mayoclinic.org/comment/232999/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 28, 2019

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