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Comments (2,056)
Shari, that's so great to hear that you are doing so well!!! Did you have genetic...
https://connect.mayoclinic.org/comment/244183/
@elgie17 I literally just did the 24 hour pee test. My husband took it in this...
https://connect.mayoclinic.org/comment/1232411/
Hello @hunts1014 My original lesion was found during a routine upper endoscopy. My first two surgeries...
https://connect.mayoclinic.org/comment/1234763/
Hi @marciamiller I also have DIPNECH and lung NETS (cancer). I’m guessing you saw Dr. Ramirez....
https://connect.mayoclinic.org/comment/1162740/
@jhhaas Good idea to get a second opinion. Glad you don’t have coughing. Octreotide also helps...
https://connect.mayoclinic.org/comment/1143685/
The pain in the left arm would probably be depending on how the surgery goes. I...
https://connect.mayoclinic.org/comment/1108182/
My goodness, you’ve had the mother load when it comes to testing. I met the benchmark...
https://connect.mayoclinic.org/comment/1104138/
Hi, thank you! Yes, I do intend to address all my side effect issues with the...
https://connect.mayoclinic.org/comment/1103497/
Being the "healthiest sick guy he knows!" is quite the compliment! Congratulations on living well, in...
https://connect.mayoclinic.org/comment/1084151/
While I haven’t been diagnosed with DIPNECH I am 2 years into my treatment journey living...
https://connect.mayoclinic.org/comment/1070929/
Welcome, @canuk! As someone living with NETs for over 13 years, you will have a lot...
https://connect.mayoclinic.org/comment/1070890/
I was 59 when I was diagnosed and 60 when I found I was at stage...
https://connect.mayoclinic.org/comment/1054505/
Hi. I was very lucky. I didn’t have to have chemo or radiation. I just had...
https://connect.mayoclinic.org/comment/1046358/
Hi Theresa Does Mayo in Jacksonville have the equipment I live on Long Island NY I...
https://connect.mayoclinic.org/comment/1023929/
I wash my wig carefully using a little mild shampoo (Paula sells one too) in wash...
https://connect.mayoclinic.org/comment/1011193/
What I did was to do a deep dive into the process. First I set my...
https://connect.mayoclinic.org/comment/1000033/
In May I had the entire lower left lobe removed for a 14mm Adenocarcinoma. I was...
https://connect.mayoclinic.org/comment/989273/
Diana, Thanks for your response. I’ve been just hanging waiting to get information about diagnosis and...
https://connect.mayoclinic.org/comment/975230/
Hello!! Thank you for your kindness! Yes, I had surgery at the Mayo Clinic Jacksonville on...
https://connect.mayoclinic.org/comment/962471/
thank you very much. I live in florida
https://connect.mayoclinic.org/comment/944904/
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