Neuroendocrine Tumors (NETs): Discussions | Page 84

Hi. I have been experiencing excruciating and debilitating joint and muscle pain for several months now....

https://connect.mayoclinic.org/comment/289800/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2020

Thank you. I'm originally from Kenosha. But currently living in Charleston SC. Good luck. And fed...

https://connect.mayoclinic.org/comment/1231756/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 4:31pm

Hello @hans051275 and welcome to the NETs support group on Mayo Connect. I agree with @dbamos1945...

https://connect.mayoclinic.org/comment/1242537/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21 5:53pm

That’s my plan know matter WHAT to LIVE long and STRONG!! I have scans every six...

https://connect.mayoclinic.org/comment/1279960/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12 9:46am

I'm sorry to hear of your dad's diagnosis. I know it's scary and you're smart to...

https://connect.mayoclinic.org/comment/1273233/

Discussion: Found out my dad has cancer: They say it’s Neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 3 10:32am

And good morning to you. It's a different feeling to get a diagnosis of recurrence. Not...

https://connect.mayoclinic.org/comment/232712/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Hello @gg66 I found sharing very helpful when I was first diagnosed 4 years ago. I...

https://connect.mayoclinic.org/comment/1190817/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2024

Hello Hopeful33250. Thank you so much for your replies! I will keep you in my prayers...

https://connect.mayoclinic.org/comment/1236092/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13 1:37pm

@dbamos1945 Thank you for the kind words. I was excited but had many questions when they...

https://connect.mayoclinic.org/comment/1207616/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9 11:28am

I’m not sure if your question was to me, but I’ll answer anyway. No, I’m not...

https://connect.mayoclinic.org/comment/1209850/

Discussion: Diagnosed with DIPNECH yesterday!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12 11:24am

@gg66: Agree with all above, unfortunately, NETS stinks! HOWEVER, if we were given a choice between...

https://connect.mayoclinic.org/comment/1191208/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2024

"How much was removed did they reconnect, did you wear a colostomy bag?" They removed approximately...

https://connect.mayoclinic.org/comment/1312645/

Discussion: Any one have experience with Dr J Maxwell (surgical oncologist) at MD

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25 2:12pm

Hello? 👋 can’t believe I’m reading this about paraganglioma and carotid body tumor. This is what...

https://connect.mayoclinic.org/comment/1322538/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7 7:57pm

May husband has an endocrino tumor , it seems that it expand to the líver si...

https://connect.mayoclinic.org/comment/1306540/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 18 12:10am

My husband has been getting Lanreotide injections for 2 1/2 years after a)having surgery to remove...

https://connect.mayoclinic.org/comment/1332000/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21 12:09pm

Hi Colleen I was seen at Mayo in Scottsdale when I lived there in 2012. I’m...

https://connect.mayoclinic.org/comment/1318256/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2 12:31am

Thank you very much for your reply. I am happy to hear that everything was well...

https://connect.mayoclinic.org/comment/1205704/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7 5:11am

I also have struggled with this in the past. Limiting salt can help. My surgeon suggested...

https://connect.mayoclinic.org/comment/1191512/

Discussion: Anyone have experience with Acites?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 16, 2024

Hello @jlw218 and welcome to Neuroendocrine support group on Mayo Connect. I appreciate your helpfulness to...

https://connect.mayoclinic.org/comment/1177317/

Discussion: Neuroendocrine insulinoma and MDS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2024

Thank you, Colleen, It is nice to have a connection with people on the same road....

https://connect.mayoclinic.org/comment/1075210/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2024

Neuroendocrine Tumors (NETs) Support Group