Neuroendocrine Tumors (NETs): Discussions | Page 83

Hi! My name is Nancy and I live in Cape Coral, Florida. I have been to...

https://connect.mayoclinic.org/comment/39442/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2018

Hi Faith: I went to the NIH in April, 2016. My mom never went there. She...

https://connect.mayoclinic.org/comment/163589/

Discussion: NIH clinical study looking for the gene causing carcinoid cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2017

Yes, @joannem, Carcinoid cancer is difficult to explain. I always say that it is a rare...

https://connect.mayoclinic.org/comment/102040/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2017

Hello @tresjur and welcome to Mayo Connect. I appreciate your attitude and the "glass half-full" approach...

https://connect.mayoclinic.org/comment/101994/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2016

Dear Gaylejean: If you would like to find a carcinoid support group in your area here...

https://connect.mayoclinic.org/comment/101983/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11, 2016

hey @gg66, I thought I'd throw in my welcome too. I see your question generated a...

https://connect.mayoclinic.org/comment/1196626/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 24, 2024

@gangcarotid1 No not a New Englander! But both my husband and I are British!! We immigrated...

https://connect.mayoclinic.org/comment/1264167/

Discussion: Was it difficult to determine if your paraganglioma was active?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22 12:35pm

My husband has much the same type of NET as you. It is grade 1 but...

https://connect.mayoclinic.org/comment/837108/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 3, 2023

I am a grade 1, stage 4 and know exactly how you both feel. It’s the...

https://connect.mayoclinic.org/comment/1238295/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16 12:22pm

I too appreciate being able to read of people's experiences, I live in Australia and I...

https://connect.mayoclinic.org/comment/1223283/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27 3:39pm

I was diagnosed with pituitary adenoma and successfully had a large tumor surgically removed almost 15...

https://connect.mayoclinic.org/comment/610145/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2021

Money is a huge problem. I've been disabled for 20 years, which hit us hard economically....

https://connect.mayoclinic.org/comment/1228008/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 6:42pm

@nohrt4me, you will find many resources and programs for all types of cancers, including chronic management...

https://connect.mayoclinic.org/comment/697755/

Discussion: Stress Management for Cancer: Free online course from Mayo

Support Group: Cancer: Managing Symptoms

Posted: Apr 10, 2022

I found this helpful article about nutrition and NETs - Eating Right with Neuroendocrine Tumors https://netrf.org/old-for-patients/living-with-nets/nutrition/...

https://connect.mayoclinic.org/comment/1280184/

Discussion: NETS and Nutrition

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12 1:14pm

Thanks for your update. It made me realize I haven't even looked at this thread since...

https://connect.mayoclinic.org/comment/1272515/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2 10:41am

Oh my word - this is exactly what has happened to me!!!!! I changed my high...

https://connect.mayoclinic.org/comment/1285386/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19 11:22am

I had a resection in 2015 and had about a foot removed. Yes you will have...

https://connect.mayoclinic.org/comment/831318/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

I wish I could say something really positive to help you. I am just not sure...

https://connect.mayoclinic.org/comment/1287239/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22 3:30am

The same thing happened to me: I’ve been on these shots for 13 months already but...

https://connect.mayoclinic.org/comment/1288910/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24 11:41am

I have atypical thymic carcinoids that have grown and spread throughout pleura, and mediastinum. currently causing...

https://connect.mayoclinic.org/comment/1324735/

Discussion: Anyone have lung NETs lining your pleura?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 11 7:17am

Neuroendocrine Tumors (NETs) Support Group