Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,941 total results

Comments (1,780)

My chemotherapy was difficult to deal with, it wasn’t immediate but accumulative effects were challenging. Fatigue,...

https://connect.mayoclinic.org/comment/1025991/

Discussion: Atypical pulmonary carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2024

After rangaling for a year between removing my left and living with tumors(3, 1 calcified), I've...

https://connect.mayoclinic.org/comment/1003342/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

Hello, I have a stage 3 lung NET. I found a lot of good information on...

https://connect.mayoclinic.org/comment/998253/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2024

Thank you. So you live in the Bay Area? I am having a consult with Natalie...

https://connect.mayoclinic.org/comment/992623/

Discussion: Anyone have neuroendocrine tumor (NETs) of the breast?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2024

That sounds like a tough recovery. I live about 1 1/2 to 2 hours from Mayo...

https://connect.mayoclinic.org/comment/990195/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Jan 2, 2024

I live in Louisville,KY. Just diagnosed with net on pancreas, following endoscopy with ultrasound. Pathology says...

https://connect.mayoclinic.org/comment/984672/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 21, 2023

I had my pituitary surgery x2, 20 years ago, and was told there is no correlation,...

https://connect.mayoclinic.org/comment/966098/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2023

My CAPTEM treatment was the same minus the injections. The last two months have only been...

https://connect.mayoclinic.org/comment/956992/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2023

I can only respond with my own experience. But first off am sending both sympathy and...

https://connect.mayoclinic.org/comment/953249/

Discussion: Anyone have neuroendocrine tumor (NETs) of the breast?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

Hello @newnet and welcome to the NETs support group on Mayo Connect. I'm glad that you...

https://connect.mayoclinic.org/comment/941555/

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 4, 2023

I am so sorry for her pain, but it is not unusual. However, it does subside...

https://connect.mayoclinic.org/comment/934820/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2023

@ralvarez38 My daughter’s Endocrinologist was Dr. Mary Lee Vance at UVA in Charon, VA. Amazing. She...

https://connect.mayoclinic.org/comment/923306/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 3, 2023

Thanks for thinking of us! Thoughtful of you, and appreciated. Right now I have no symptoms...

https://connect.mayoclinic.org/comment/910889/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 10, 2023

Tomorrow, August 10, the Carcinoid Cancer Foundation (CCF) will be hosting a Facebook Live Event. As...

https://connect.mayoclinic.org/comment/910080/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 9, 2023

So glad that you found this video helpful. If you go to YouTube you will find...

https://connect.mayoclinic.org/comment/902641/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 26, 2023

I am new to the group. My husband who is 62 years old starting having problems...

https://connect.mayoclinic.org/comment/887852/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 30, 2023

Dbamos1945 and bubbles 2023 - Dbamos, your response struck a cord with me as your response...

https://connect.mayoclinic.org/comment/885814/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

So sorry that you are going through this. Have you tried other hospital systems that could...

https://connect.mayoclinic.org/comment/874394/

Discussion: Neuroendocrine tumor and carcinoid tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2023

Hello Teresa and thank you for having me! I have had symptoms, but, as many people,...

https://connect.mayoclinic.org/comment/870403/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 1, 2023

I am also facing distal pancreatectomy with spleen removal and possible gall bladder removal. I was...

https://connect.mayoclinic.org/comment/853193/

Discussion: New diagnosis of NET: What should I know and do to plan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2023

Digestive Health

Follow

14554

2 minutes ago

Cancer: Managing Symptoms

Follow

4289

7 minutes ago

Follow

6290

34 minutes ago

Follow

7952

1 hour ago

Pancreatic Cancer

Follow

2674

2 hours ago