Neuroendocrine Tumors (NETs) Support Group

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Comments (2,056)

Thanks for the suggestions. I prefer not having someone at night. I don’t think I would...

https://connect.mayoclinic.org/comment/989847/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Jan 1, 2024

I totally know how he and you feel. At least you are there to confirm it....

https://connect.mayoclinic.org/comment/979851/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2023

My "bucket list" is complete. I have been the "care giver" for both my father and...

https://connect.mayoclinic.org/comment/942391/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Oct 5, 2023

Hello @charlenesf and welcome to the NETs support group on Mayo Connect. Thank you for sharing...

https://connect.mayoclinic.org/comment/941364/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2023

I’m so sorry to hear your mother is having these terrible symptoms, , I’m 61 and...

https://connect.mayoclinic.org/comment/940275/

Discussion: Mother might have neuroendocrine tumors, is being told she has IBS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

I was diagnosed with Carcinoid tumor in Feb 2023. My Chromogranin A blood count had hit...

https://connect.mayoclinic.org/comment/929310/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13, 2023

Good morning The surgeon has very straightforward and honest. He said that surgery is the best...

https://connect.mayoclinic.org/comment/913416/

Discussion: How do I know somatostatin is in my system?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2023

Hi @woundedwarrior1969, I moved your message about living with 3 NETs tumors for 50 years to...

https://connect.mayoclinic.org/comment/911813/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2023

Thank you for replying to my post. It's been a lonely road the past few months....

https://connect.mayoclinic.org/comment/911526/

Discussion: Pheochromocytoma: Anyone being treated for an adrenal mass?

Support Group: Diabetes & Endocrine System

Posted: Aug 12, 2023

You’ve received valuable comments and suggestions on how to live with our NETS. I’ll add that...

https://connect.mayoclinic.org/comment/896457/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2023

Highest blood pressure I have had to date is had is 247 over 185, you can...

https://connect.mayoclinic.org/comment/892763/

Discussion: SDHB Positive and Ga-68 Dotatate Scan question.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 9, 2023

Our state of mind has a big effect on our dealing with and healing cancer. I'm...

https://connect.mayoclinic.org/comment/879645/

Discussion: Adenocarcinoma with Neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2023

I just want to say a big “thank you” to everyone who has taken the time...

https://connect.mayoclinic.org/comment/874478/

Discussion: Neuroendocrine tumor and carcinoid tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2023

Talkativeinfl, first of all, I’m so very sorry to hear about your husband’s situation and your...

https://connect.mayoclinic.org/comment/873777/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2023

I've read previous comments & my experience has been mostly same as oncologist told me that...

https://connect.mayoclinic.org/comment/868242/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2023

I had the same issue with the protein shakes ( upset stomach). Cornstarch at bedtime help...

https://connect.mayoclinic.org/comment/863278/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20, 2023

Here is my diet which covers almost every day of the year. Breakfast---a cup of coffee...

https://connect.mayoclinic.org/comment/856388/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

@lenny48ca I can certainly understand that the uncertainty is disconcerting to you as it would be...

https://connect.mayoclinic.org/comment/852750/

Discussion: Has the NET found in my axilla or arm pit likely to have spread?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2023

Hello @sidmom347 and welcome to the NETs discussion on Mayo Clinic Connect. I so applaud you...

https://connect.mayoclinic.org/comment/846445/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2023

the town of Rochester is all about services to Mayo patients-hotel shuttles, meal delivery—all very supportive....

https://connect.mayoclinic.org/comment/838084/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5, 2023

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